by Susannah Fox | Apr 8, 2013
New analysis of the Pew Research Center’s 2010 health survey results show differences among three populations: veterans of the U.S. military who obtain their health care within the Veterans Health Administration of the U.S. Department of Veterans Affairs (VA);...
by Susannah Fox | Apr 2, 2013
Four years ago this week, e-Patient Dave published, “Imagine someone had been managing your data, and then you looked,” and forever changed the national conversation about health data. I have described that post as an earthquake — a surprise to those...
by e-Patient Dave | Mar 30, 2013
Well well well, dare I say the times are changing? Not long ago all we ever heard was “Stay off the internet.” But a friend just said his endocrinologist and his radiologist BOTH recommended ThyCa.org to him! (Twitter: @ThyCaInc) It’s “created...
by John M. Grohol, Psy.D. | Feb 11, 2013
If any of this is unclear, write to blog@participatorymedicine.org. Thank you for blogging for e-patients.net! Check the Calendar in the e-Patients.net Dashboard to see what else is in the queue before you decide to post on a given day. Featured posts (ie, ones other...
by Susannah Fox | Feb 9, 2013
For over a year I’ve been the accidental manager of a community garden. All I did — I swear — is point out an open plot of land and people started pitching in, planting, asking friends to join them. All of a sudden we’d transformed a bare patch...
by e-Patient Dave | Jan 27, 2013
Guest post by Elaine Waples, one of our new (today) members of SPM (with her husband Brian Klepper). This story illustrates one of the core dysfunctions in American medicine today – lack of coordination – and makes a compelling case for patients and...
by Susan Woods | Jan 21, 2013
This weekend is momentous not only for the 2nd inauguration of the President. History will say the Veterans Health Administration is innovative, truly patient centered and even a bit risky. Today, VA patients can view, print and download ALL their health record data...
by e-Patient Dave | Jan 18, 2013
SPM member Marge Benham-Hutchins (see her December post) spotted this item. It’s a vital point for patient and family awareness, leading to patient engagement – patients as responsible drivers of their health. I added the italics below. From a recent...
by Susannah Fox | Jan 15, 2013
Survey data is a snapshot of a population, a moment captured in numbers, like vital signs: height, weight, temperature, blood pressure, etc. People build trend lines and watch for changes, shifting strategies as they make educated guesses about what’s going on....
by e-Patient Dave | Jan 14, 2013
The report was issued overnight – see Susannah’s post here about it, media coverage (via Google), and blogs. I’m stealing some Susannah Fox thunder here because I can’t wait, and you should carve out a spot in your calendar...
by e-Patient Dave | Dec 30, 2012
SPM member Danny van Leeuwen @HealthcareHatsis an active member of PCORI’s patient engagement workgroup. A month ago he mentioned a post about PCORI on WBUR’s CommonHealth blog, Medical Research: By Law, It’s All About You. I said “You should make...
by e-Patient Dave | Dec 29, 2012
Merle Bushkin of MedKaz (a secure PHR device) is extremely unhappy with the reality that although we’ve spent years and billions on EMR adoption, the practice of healthcare hasn’t transformed yet. In “Where’s the urgency, the anger, the...
by Susannah Fox | Dec 28, 2012
I was curious to see which were the top 5 posts, traffic-wise, and figured readers might be interested, too. Here’s the line-up: #1: Open knowledge saves lives. Oppose H.R. 3699! by Gilles Frydman The e-patients.net post with the highest number of views is a...
by e-Patient Dave | Dec 16, 2012
I haven’t blogged about it much this year due to the pressures of my own work, but I’m seriously impressed with the relevance, quality and user-friendliness of the work being done by the folks at ONC (the health IT branch of the department of Health &...
by e-Patient Dave | Dec 4, 2012
A guest post by SPM member Marge Benham-Hutchins, PhD, RN, an assistant professor of nursing informatics at Texas Woman’s University. This is an email she sent me today, citing an online discussion of the appalling death in the Health Affairs column...
by Susannah Fox | Nov 22, 2012
A guest post from the Engage with Grace team… One of our favorite things we ever heard Steve Jobs say is… ‘If you live each day as if it was your last, someday you’ll most certainly be right.’ We love it for three reasons: It reminds all of us that living...
by Susannah Fox | Nov 21, 2012
David Gorn, a reporter for California Healthline, contacted me after the release of the Pew Internet/California HealthCare Foundation’s Mobile Health 2012 report and asked if there were interesting findings on rural Americans. Indeed there are and I wish...
by e-Patient Dave | Nov 1, 2012
Next in our series of posts by SPM members on their experience at last weekend’s PCORI workshop. See Monday’s introductory post. I recently met (face to face) Danny van Leeuwen, one of the newer members of our society. He’s a sensitive, caring...
by e-Patient Dave | Oct 31, 2012
Second in a series announced yesterday of posts by SPM members who attended last weekend’s PCORI workshop. This one’s from Kathy Day, an avid e-patient advocate from Maine. This originally appeared here on her blog, on Monday. Why PCORI made me endure...
by e-Patient Dave | Oct 30, 2012
All: I’d like to collect a list of all blog posts about this PCORI weekend, from SPM members (our Society) and anyone else. Please write to blog@participatorymedicine.org, and disregard the auto-reply that you’ll get. __________________Â This post started...
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