by e-Patient Dave | Nov 1, 2012
Next in our series of posts by SPM members on their experience at last weekend’s PCORI workshop. See Monday’s introductory post. I recently met (face to face) Danny van Leeuwen, one of the newer members of our society. He’s a sensitive, caring...
by e-Patient Dave | Oct 31, 2012
Second in a series announced yesterday of posts by SPM members who attended last weekend’s PCORI workshop. This one’s from Kathy Day, an avid e-patient advocate from Maine. This originally appeared here on her blog, on Monday. Why PCORI made me endure...
by e-Patient Dave | Oct 30, 2012
All: I’d like to collect a list of all blog posts about this PCORI weekend, from SPM members (our Society) and anyone else. Please write to blog@participatorymedicine.org, and disregard the auto-reply that you’ll get. __________________Â This post started...
by e-Patient Dave | Sep 30, 2012
I’ll be blunt here: three years ago, late 2009, when I gave my first keynote speech ever, many observers said “Well Dave, that’s fine for you, but you’re the only one.” I replied: if I’m the only one, there’s nothing to talk...
by Kathleen O'Malley | Sep 27, 2012
This blogpost by Chuck Alston and Patrick McCabe originally appeared on the Health Affairs blog. Many thanks to SPM member Michael Millenson for alerting e-Patients.net to this piece. It has been 22 years since David M. Eddy — the heart surgeon turned...
by Kathleen O'Malley | Sep 26, 2012
Guest blogger Marya Zilberberg is the author of Between the Lines: Finding the Truth in Medical Literature. She originally posted this piece on her blog Healthcare, etc. I have been looking up information on endometriosis for a friend of mine, and came upon this from...
by Susannah Fox | Sep 7, 2012
I witnessed an intriguing Twitter conversation between Christy Collins and Greg Biggers about disease names, so I asked Christy to write up her thoughts. It is an honor to host this guest post: By Christy Collins When I started an advocacy and research organization...
by Susannah Fox | Sep 5, 2012
This is a request for help finding people who have had bad experiences with online health resources. Let me first say that the internet is often a positive force in people’s lives. My own organization’s research can paint a rather rosy picture: teens are...
by e-Patient Dave | Aug 24, 2012
Over on Mind The Gap, Steve Wilkins (Twitter) has a poster about patient engagement that annoyed me:-) right out of the box – because although I pretty much like everything he does, the poster starts with what I find to be the ouchiest mental disconnect in all...
by e-Patient Dave | Aug 16, 2012
For a couple of years I’ve been wondering when controversy and snark would hit this movement. Looks like it showed up this morning. Today one of our members posted on our members-only email group: I was on a phone call recently with some colleagues in health IT...
by e-Patient Dave | Jul 31, 2012
As noted a few days ago, I’ve been at the ABIM Foundation Forum. This is, frankly, the most heartening event I’ve been to: the Foundation people are working hard to generate real transformation in the practice of medicine, including the new Choosing Wisely...
by Susannah Fox | Jul 30, 2012
Here’s a video that had me at hello — it leads with data, then follows with insights from people I admire: If you’re intrigued, look for other posts about women in healthcare on Twitter by searching for the hashtag #xxinhealth. And for more wisdom...
by e-Patient Dave | Jul 25, 2012
On Monday Ileana Balcu posted about a great new article by SPM member Eve Harris, whom we’ve covered before. Eve’s post is a superb depiction of how an empowered patient – someone who knows how to think for themselves and speak up –...
by e-Patient Dave | Jul 24, 2012
Think everything in your medical record is spotless and flawless? Think again: almost everyone I know who’s checked their record has found flaws, omissions, orders that were never carried out. There’s a lot we can do, e-patients, engaged consumers, to...
by e-Patient Dave | Jul 23, 2012
The ever-vigilant Ted Eytan MD writes: I recommend taking a look at this and seeing if the proposed changes are more patient friendly, or if they go far enough to allow patients to see their health data online. At issue is a bill in the California legislature to...
by Kathleen O'Malley | Jul 23, 2012
Dr. David Lee Scher is a former cardiac electrophysiologist and is an independent consultant and owner/ director at DLS Healthcare Consulting, LLC. Twitter: @dlschermd, Dr. Scher blogs at http://davidleescher.com. These five points are important because they address...
by Kathleen O'Malley | Jul 23, 2012
Nancy B. Finn is a writer and thought leader on the impact of digital communication on organizational behavior, health care, and patient care. I was recently diagnosed with breast cancer for the second time, exactly five years to the day after my first occurrence. I...
by e-Patient Dave | Jul 23, 2012
Last summer I visited Health Literacy Missouri, and summed up the great work I saw there in Clarity is Power. Today’s Boston Globe has another example – the illustration at right, what’s known as a decision aid, to help patients engage in making...
by Susannah Fox | Jul 19, 2012
A few weeks ago, with a combination of alarm and excitement, I realized that I would be presenting my research about rare-disease communities to a roomful, not just a row full, of actual rare-disease patients and caregivers. This was no academic exercise. It was as if...
by e-Patient Dave | Jul 17, 2012
As Meaningful Use rolls out, and providers are required to share data with us, there are a lot of concerns about whether their lives will spin out of control as patients besiege them with ignorant questions. We’ve discussed this in our many posts about the...
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