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Joe Kvedar’s “cHealth blog” (Connected Health)

We’re long overdue in welcoming Joe Kvedar MD of Partners Healthcare to the blogosphere. From his About page: “The term “connected health” reflects the range of opportunities for technology-enabled care programs and the potential for new strategies in...

Dennis Quaid’s “Chasing Zero”

Actor Dennis Quaid has produced an outstanding, informative, empowering and motivating CME* program, “Chasing Zero: Winning the War on Healthcare Harm.” It’s on the Discovery Channel. Part 1 is here. This is the best-produced material I’ve seen...

Teaching HIPAA with a Seinfeld clip

On my personal website I posted a HIPAA clarification flyer that I made up: “It’s your medical record. You have a right to it. It’s the law.” The PDF links to a Seinfeld clip from 1996 – the year HIPAA was passed.  

Insights on how the HITECH stimulus plan is working

In my previous post I noted that Vince Kuraitis and David Kibbe are running an excellent series, “Is HITECH Working?”* After a full year of increasing tensions, claims, and counterclaims, reading these posts has given me hope that it’s all panned out into...

Health 2.0 Europe: A Moveable Feast

Ernest Hemingway wrote that Paris is a moveable feast, not fixed in time or place. I think that describes great gatherings of any kind, including great conferences, which begin before the first speaker takes the stage and don’t end simply because the...

Health Data is Useful… if it Informs Conversations

Dr. Roni Zeiger, MD is currently Chief Health Strategist at Google where he has helped create and lead Google Health.  He continues to see patients on occasional evenings and weekends at a local urgent care center.  Roni earned his MD at Stanford and completed his...

What my mom takes to the doctor

I was talking to Mom (age 80) the other night, and she mentioned a document she updates regularly. She prints a fresh copy to take to every doctor visit, so they’ll always have it up to date and won’t have to go digging. We’ve never discussed topics...

A Patient-Centric Definition of Participatory Medicine

Participatory Medicine is a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in which providers encourage and value them as full partners. This new definition devised by the board of the Society of...

Chronic Disease in Data and Narrative

For the past 5 months I have been immersed in data and narrative about chronic disease. The result, “Chronic Disease and the Internet,” is a report sponsored by the Pew Internet Project and the California HealthCare Foundation. We find that living with a...

Librarians and ePatients as Partners

I am thrilled to bring another guest post, this time from Luke Rosenberger, a medical librarian who has forcefully embraced social media & participatory medicine, as you’ll see. Libraries & librarians have always held a special place in helping other...

NPSF’s magnificent Universal Patient Compact

Updated 3/12/2014 with new links at bottom. One of my personal pleasures in the first year of the Society for Participatory Medicine has been discovering people in other parts of the “patient culture” who’ve been doing wonderful, empowering,...

Why is participatory medicine such a tough sell?

Kevin A. Clauson, Pharm.D. is an associate professor at the College of Pharmacy and adjunct associate professor at the College of Medicine – Biomedical Informatics Program at Nova Southeastern University in Fort Lauderdale,  FL.  He teaches a course on Consumer Health...

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