by e-Patient Dave | Dec 29, 2014
Our movement seems to be entering a turning point, and today Paul Levy’s blog had a great example. The change is embodied by the 2015 theme of our e-patient conference buddies at Medicine X: “This is the year of doing.” In my view this means two...
by e-Patient Dave | Dec 22, 2014
E-patients know that social media can be a potent tool for spreading the movement, spreading the message, and connecting with others. Some of us are better at it than others; if you’re looking for someone to follow who does it well, try SPM member and Medicine-X...
by Nancy Finn | Dec 22, 2014
MHealth Over 90% of the world’s population has some type of mobile phone, according to reports from the ITU (International Telecommunications Union and PEW research. mHealth will continue to be a major factor in technology and health in 2015, with new apps that...
by Casey Quinlan | Dec 16, 2014
In a report released today (December 16, 2014), Consumer Reports shares insights from a survey of 1,200 people who were recently hospitalized. SPM is not surprised by the findings, which include the fact that patients who said they received respectful treatment by...
by Nick Dawson | Dec 15, 2014
A physician friend once shared his belief that the main product of a physician’s productivity is the diagnosis. Setting aside feelings about the notion of a work product in medicine, I’ve quite liked the simplicity of his distillation. The diagnosis is the...
by Casey Quinlan | Dec 12, 2014
This post by long-time SPM member Michael Millenson first appeared on the EngagingPatients.org blog. We’re re-posting it here to both put it on the membership’s radar, and to invite comments on Michael’s POV that “As much as we can argue that...
by Nancy Finn | Dec 11, 2014
Rapid advances in the technologies giving scientists the ability to analyze, understand and identify the unique characteristics in the genome of every human being are now being translated into clinical applications that are actually prolonging the life of many...
by Nick Dawson | Dec 5, 2014
Guest post by Hugo Campos; introductory note from Society for Participatory Medicine president Nick Dawson Every movement evolves. And as a grassroots social justice movement, the Participatory Medicine Movement is also growing, changing and evolving. Something...
by e-Patient Dave | Dec 3, 2014
Edited an hour later – added Business Impact section at end Healthcare providers who are tracking patient experience and patient satisfaction, take note: a new study reported yesterday in Science Daily provides evidence that we patients really like it when we...
by e-Patient Dave | Dec 2, 2014
Cross-posted from my own site. This is about a free, non-commercial event that’s intended to be a radical exploration of a new way to discuss participatory thinking with people who don’t live in health policy circles – ordinary citizens! ______ For...
by Casey Quinlan | Nov 17, 2014
Reposted from the Mighty Mouth blog Most of the people I meet in my voyages ’round healthcare system transformation, grassroots edition, arrived at the portal of #epatient via a trip through the medical-industrial complex. Either they, or someone they cared for, wound...
by Nancy Finn | Nov 13, 2014
The Commission on the Status of Women (CSW) was established by the United Nations Economic and Social Council (ECOSOC) in 1946. It is the principal global policy-making body dedicated exclusively to gender equality and advancement of women. The active...
by e-Patient Dave | Nov 7, 2014
Susannah Fox, long one of our most popular and prolific bloggers, is roaming to wider audiences these days. She’s entrepreneur-in-residence at Robert Wood Johnson, she has her own site, and she’s just started writing on the hip-hip site Medium.com....
by Ileana Balcu | Nov 4, 2014
Society for Participatory Medicine member Carly Medosch and her mother Mary Jo have run the Crohn’s and Colitis Foundation of America’s Fredericksburg, VA support group for the past 6 years. Crohn’s disease and ulcerative colitis are two forms of...
by Casey Quinlan | Oct 30, 2014
SPM member Casey Quinlan (who’s posting this) was invited to attend an event at the WHO in Geneva. This post originally appeared on her Mighty Casey Media blog, and is reposted here in its entirety by SPM request. Guess who got invited to WHO? No, really....
by Nancy Finn | Oct 27, 2014
By Nancy B. Finn There has been so much discussion online and in the press about electronic health records and physicians sharing EHR data with patients via such tools as OpenNotes and Blue Button, that the personal health record (PHR) has been lost in the dialogue....
by Ileana Balcu | Oct 22, 2014
Wikipedia says “Participatory medicine is a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and … providers encourage and value them as  full partners.” That movement gets a big boost in...
by e-Patient Dave | Oct 14, 2014
I could smack myself for not noticing this earlier, but it happened while I was at the ESMO conference (the “European ASCO” cancer conference) in Madrid last month: Amy Dockser Marcus has another great piece on how medicine is truly starting to engage with...
by e-Patient Dave | Oct 6, 2014
Yesterday at the New York Academy of Medicine was the first of Jessie Gruman’s two remembrance events, which we blogged about. Here’s a view of the gathering, which was followed by a reception. It was a fitting, moving, great tour through her life, with...
by e-Patient Dave | Sep 16, 2014
Today in our Society’s journal, SPM co-founders Joe and Terry Graedon of PeoplesPharmacy.com posted something I couldn’t agree with more: e-Patients Never Retire That’s kinda by definition, eh? But there’s an uppity Sixties edge to this, and...
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