by e-Patient Dave | Mar 30, 2016
Somehow I’d never heard of National Doctors’ Day, but apparently it started 25 years ago, in 1991. As one of many SPM members whose life was saved (or is being helped) by excellent physicians, I’m in! And I want to shine a broader spotlight on the...
by e-Patient Dave | Mar 22, 2016
We’ve often written here about open access medical literature (freely available) vs “paywalled” journals. It’s a controversial subject, and this guest post is about an idea I’ve never heard of: a hackathon to explore the subject. (In the...
by Gilles Frydman | May 24, 2012
Update 1 June 3: if you’re not familiar with the Open Access issue, start with Peter Schmidt’s comment below, citing a 2008 journal article on the issue, by a former editor of the British Medical Journal. ___________ Update 2 June 3 @9:50 AM PST: we are...
by Susannah Fox | May 5, 2009
Update on 12/3/14: Nature re-ignited the access debate when they announced that they will make all their articles “free to view” (but if you read the fine print: it makes the “dark social” practice of #icanhazpdf and other access work-arounds...
by e-Patient Dave | Dec 10, 2020
As regular readers know, our Society for Participatory Medicine has always been a strong advocate for the OpenNotes movement as a key enabler of patient power. As co-founder Dr. Danny Sands often says in his speeches, “How can patients participate if they...
by e-Patient Dave | Sep 17, 2018
For updates, follow Casey’s tweets on the #CochraneForAll hashtag – tweets by her and tweets tagging her. Casey will be a speaker at #SPM2018 on Oct 17, in a session with Ivan Handler of the Insightamation blog – “Thoughts and provocations on...
by Casey Quinlan | Aug 5, 2018
Guest post by SPM Lifetime Member Joshua C. Rubin, JD, MBA, MPH, MPP Last week, Facebook’s unprecedented stock price collapse triggered by concerns over personal data privacy, as well as same-day commentary regarding GlaxoSmithKline’s investment in 23andMe to gain...
by e-Patient Dave | Jul 26, 2018
A new article in the open access BMC journal Implementation Science reviewed 48 articles about involving patients in projects that redesigned small and large parts of healthcare delivery. Conclusion: higher levels of engaging patients in the work led to higher level...
by Sue Woods | Dec 6, 2017
The following is a shared Press Release from the Society of Participatory Medicine and the Journal of Medical Internet Research: JMIR Publications is the new publisher of the Journal of Participatory Medicine (JoPM) (Toronto/Boston, Dec 6th, 2017) The Society for...
by e-Patient Dave | Jul 7, 2017
SPM past board member Michael Millenson has an important new commissioned essay in the BMJ spelling out some parameters of collaborative health, which might as well have been written as participatory medicine. Happily, they made it open access so patients can read it...
by e-Patient Dave | Jan 1, 2016
One sign of a movement’s progress is when the establishment takes notice. This one’s a biggie: Regina Holliday’s Walking Gallery of Healthcare (Facebook) is in the January 16 edition of the AMA Journal of Ethics. A five page article! Click the image...
by e-Patient Dave | Dec 2, 2015
Our society’s open-access Journal of Participatory Medicine has not gotten enough play, so to speak, on this blog. Let’s try posting something about each article as it emerges. Email subscribers will receive them like any other post; online these posts...
by e-Patient Dave | Jul 10, 2015
A new article in the BMJ this week reports on a good, clever evaluation of 29 online symptom checkers, showing that some have a clue and some don’t. I love it; in my view the bottom line is “Some are better than nothing, none is near perfect, and some are...
by e-Patient Dave | Jan 18, 2015
Cross-posted from my personal blog yesterday On Twitter Friday night I learned from Dr. Sachin Jain of a November article that should be of interest to all of us who want to work toward full patient and family engagement in all aspects of medicine. To be sure, the...
by e-Patient Dave | May 4, 2014
Thanks to Twitter friend @CourageSings for this tip. I retweeted it, but I know a lot of readers of this blog will answer “yes” and might not see the tweet: Ever hit a paywall trying to access a scientific paper? For a story, would love examples from...
by e-Patient Dave | Sep 4, 2013
Updated Sept. 6: I’d forgotten that as we posted in June, Cleveland Clinic announced open access too, adding a half million patients to the total. Big news is emerging from the OpenNotes® project: big institutions are making patient access to the medical record...
by David Harlow | May 8, 2013
The new darling of the online educational community is Massively Open Online Courses (MOOCs). The example which figures most prominently in the popular imagination is the Khan Academy, though its founder says otherwise, noting that MOOCs are merely online...
by e-Patient Dave | Jan 8, 2013
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn. Here’s how to become a Society member, individual or corporate. Our publications: This blog...
by Susannah Fox | Dec 28, 2012
I was curious to see which were the top 5 posts, traffic-wise, and figured readers might be interested, too. Here’s the line-up: #1: Open knowledge saves lives. Oppose H.R. 3699! by Gilles Frydman The e-patients.net post with the highest number of views is a...
by e-Patient Dave | Dec 2, 2012
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn. Here’s how to become a Society member, individual or corporate. Our publications: This blog...
A cure for what killed Doc Tom! Can people afford it?June 27, 2025
Learning Health Systems Empower Every American to Actually Make America Healthy Again Together, Part 2May 29, 2025
More important than Time and MoneyFebruary 5, 2025
We Can Change the US Healthcare System: Your Health, Your VoiceJanuary 15, 2025
Recent Comments