by e-Patient Dave | Mar 30, 2016 |
Somehow I’d never heard of National Doctors’ Day, but apparently it started 25 years ago, in 1991. As one of many SPM members whose life was saved (or is being helped) by excellent physicians, I’m in! And I want to shine a broader spotlight on the...
by e-Patient Dave | Mar 22, 2016 |
We’ve often written here about open access medical literature (freely available) vs “paywalled” journals. It’s a controversial subject, and this guest post is about an idea I’ve never heard of: a hackathon to explore the subject. (In the...
by Gilles Frydman | May 24, 2012 |
Update 1 June 3: if you’re not familiar with the Open Access issue, start with Peter Schmidt’s comment below, citing a 2008 journal article on the issue, by a former editor of the British Medical Journal. ___________ Update 2 June 3 @9:50 AM PST: we are...
by Susannah Fox | May 5, 2009 |
Update on 12/3/14: Nature re-ignited the access debate when they announced that they will make all their articles “free to view” (but if you read the fine print: it makes the “dark social” practice of #icanhazpdf and other access work-arounds...
by e-Patient Dave | Dec 10, 2020 |
As regular readers know, our Society for Participatory Medicine has always been a strong advocate for the OpenNotes movement as a key enabler of patient power. As co-founder Dr. Danny Sands often says in his speeches, “How can patients participate if they...
by e-Patient Dave | Sep 17, 2018 |
For updates, follow Casey’s tweets on the #CochraneForAll hashtag – tweets by her and tweets tagging her. Casey will be a speaker at #SPM2018 on Oct 17, in a session with Ivan Handler of the Insightamation blog – “Thoughts and provocations on...
by Casey Quinlan | Aug 5, 2018 |
Guest post by SPM Lifetime Member Joshua C. Rubin, JD, MBA, MPH, MPP Last week, Facebook’s unprecedented stock price collapse triggered by concerns over personal data privacy, as well as same-day commentary regarding GlaxoSmithKline’s investment in 23andMe to gain...
by e-Patient Dave | Jul 26, 2018 |
A new article in the open access BMC journal Implementation Science reviewed 48 articles about involving patients in projects that redesigned small and large parts of healthcare delivery. Conclusion: higher levels of engaging patients in the work led to higher level...
by Sue Woods | Dec 6, 2017 |
The following is a shared Press Release from the Society of Participatory Medicine and the Journal of Medical Internet Research: JMIR Publications is the new publisher of the Journal of Participatory Medicine (JoPM) (Toronto/Boston, Dec 6th, 2017) The Society for...
by e-Patient Dave | Jul 7, 2017 |
SPM past board member Michael Millenson has an important new commissioned essay in the BMJ spelling out some parameters of collaborative health, which might as well have been written as participatory medicine. Happily, they made it open access so patients can read it...
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