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Why Dying is Not Giving Up

Why Dying is Not Giving Up

by | Feb 14, 2023

Throughout my time as a psychotherapist specializing in end of life diseases, primarily cancer, I have spent many hours talking with both patients and medical teams about the importance of authentic communication and end of life planning. I see this kind of planning...
Patients and Industry: Starting Our New Life Together in 2023

Patients and Industry: Starting Our New Life Together in 2023

by | Feb 1, 2023

Flash back to my article for the Society for Participatory Medicine last year: Let’s Save the Date and Make Patient Engagement Official in 2022. I’m here to deliver some great news: we tied the knot! By the power vested in clinical research, the FDA now pronounces us...
How All of Us in Healthcare Can Close the Empathy Gap

How All of Us in Healthcare Can Close the Empathy Gap

by | Jan 11, 2023

I recently saw The Color of Care, a documentary highlighting the disparate and inequitable care received by Black and Brown individuals during the COVID-19 pandemic. During the movie, Executive Producer Oprah Winfrey opined that one of the primary issues with...
Expert Advisory Boards: A New Model for Co-Exploration

Expert Advisory Boards: A New Model for Co-Exploration

by | Jan 4, 2023

A few years ago I learned that non-profit organizations MUST have a Scientific or Medical Advisory Board in order to be listed on NIH’s website as an informational resource for patients. Likewise, many foundation grants require a non-profit to have a similar...
Health Literacy Requires Talking with People – Not Patients

Health Literacy Requires Talking with People – Not Patients

by | Dec 14, 2022

“When someone is having an acute situation, that is not a teaching moment.” Peter Pitts  I recently participated on a panel at the STAT Summit with two brilliant healthcare thought leaders, former FDA Associate Commissioner and current president of the Center for...

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