by Amy Camie | Sep 21, 2021
Years before the first of my two breast cancer diagnoses, I shared live harp music in chemotherapy infusion units, spoke to support groups about the healing power of music, and developed a clinical trial exploring the effects of specific music on patients undergoing...
by Carly Flumer | Sep 13, 2021
I didn’t want to tell anyone about my diagnosis. I thought my family and a few close friends were enough. But I got brave one day four years ago and posted about it on social media. The outpouring of support was incredible. I thought, if I’m receiving this much...
by Jay Spitulnik | Sep 7, 2021
Throughout the history of the Society for Participatory Medicine (SPM), the discussions have focused on two groups of participants. The first is the patient and caregivers. SPM’s work, as illustrated in the Manifesto, has been dedicated to ensuring that members of...
by Eric Bersh | Aug 30, 2021
Conversations between SPM co-founder and Chief Advocacy Officer, Danny Sands MD and Annie Brewster MD, founder of Health Story Collaborative. Here they discuss meeting patients where they are. Did you enjoy this video?...
by Tim Blevins | Aug 23, 2021
Having been in healthcare for over 30 years as a clinician and working for four health plans, I am fortunate enough to have had exposure to a very broad network of healthcare professionals and have a deep understanding of healthcare systems and structures. I have...
by Randy Houk | Aug 16, 2021
I am so honored and excited to introduce myself to you, SPM Blog readers, SPM members and friends, and to share with you a preview of coming attractions. By that I mean that since I’ve been the new Executive Director for SPM for a day and a half, my vision for what...
by Jessica Zitter, MD MPH | Aug 10, 2021
I received an uncharacteristically anxious text from my friend Aileen: “I am having an emergency with my Mom. Please call ASAP.” When I last talked to Aileen, her mother’s dementia had been worsening slowly. A little more confusion, a stovetop left burning after...
by Eric Bersh | Aug 2, 2021
Conversations between SPM co-founder and Chief Advocacy Officer, Danny Sands MD and Annie Brewster MD, founder of Health Story Collaborative. Here they discuss the meaning and intent of Participatory Medicine. Did you enjoy this video? Sign the Manifesto and learn...
by Richard G Kahn | Jul 29, 2021
Usually, I write from the perspective of a patient advocate diagnosed with Wolfram-like syndrome, a rare disorder of the endoplasmic reticulum that typically manifests first with optic atrophy, then insulin-dependent diabetes. For the purposes of this blog post,...
by Eric Bersh | Jul 22, 2021
Conversations between SPM co-founder and Chief Advocacy Officer, Danny Sands MD and Annie Brewster MD, founder of the Health Story Collaborative. Here they discuss what it means being a doctor and having to say “I don’t know” to a patient. Did you enjoy this video?...
by Mohammed Mallouh | Jul 14, 2021
In 2013 the Institute of Medicine published a landmark 436 page consensus report, Best Care at Lower Cost: The Path to Continuously Learning Health Care in America. Its summary contains the characteristics of a continuously learning system: Note that the second...
by Christophe Jauquet | Jul 3, 2021
For the past 20 years, I’ve been involved in designing diverse health experiences: from diagnostic to adherence tools, from software for cytostatic preparation, to integrated mobile health solutions. During these projects, I cannot say that the patient was never...
by John M. Grohol, Psy.D. | Jul 2, 2021
The HIMSS21 Global Health Conference & Exhibition brings you the world-class education, cutting-edge products and solutions, and unique networking opportunities you need to solve your biggest health information and technology challenges — all at one time,...
by Lygeia Ricciardi | Jun 28, 2021
When my daughter Ada was an infant, a cardiologist told me that she needed open heart surgery, the sooner the better. Ada had been born with a small hole in her heart (a VSD), which, the doctor said, could stunt her growth and potentially cause heart failure or brain...
by John M. Grohol, Psy.D. | Jan 26, 2021
Have you heard? The Society for Participatory Medicine (SPM) is hiring an Executive Director. You can read more about the position here and how to apply. Please pass the job description along to your professional network as well as anyone you may know who may be...
by e-Patient Dave | Dec 20, 2020
Hi Fellow SPM Members, As a follow up to the note from Danny Sands on Monday, I would like to provide you with an update on some of the exciting strategy work a group of board members and others undertook this summer and fall. Much has changed in the world at large...
by Danny Sands, MD | Dec 17, 2020
Leadership transitions are an essential part of the maturity of any organization. I have been board chair of Society for Participatory Medicine (SPM) for many years and now it is time to pass the torch to Mary Hennings so that I may become our first chief advocacy...
by Brian Mack | Jul 10, 2020
To paraphrase Abraham Lincoln, “A compass will point you to true north, but it doesn’t show you the swamps. If you get bogged down, what’s the use of knowing the direction?” When on a journey, it’s a good policy to periodically take...
by John M. Grohol, Psy.D. | Jun 10, 2020
Join a live virtual Healing Story Session on June 22! “Pain, suffering, and ambivalence can co-exist with peace, joy, and self-love. Healing can take many forms. Sharing our stories helps others to find their way, and reminds us all that we are not alone.” —...
by John M. Grohol, Psy.D. | May 19, 2020
The Society for Participatory Medicine (SPM) and the Health Story Collaborative (HSC) are partnering during this time to bring the power of storytelling to health care and explore what it means to practice participatory medicine in times of COVID-19. Please read the...
Learning Health Systems Empower Every American to Actually Make America Healthy Again Together, Part 2May 29, 2025
More important than Time and MoneyFebruary 5, 2025
We Can Change the US Healthcare System: Your Health, Your VoiceJanuary 15, 2025
The Killing of Brian Thompson was AwfulDecember 30, 2024
Recent Comments