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Storytelling: Where Compassion is Born

Storytelling: Where Compassion is Born

by | Oct 6, 2022

Editor’s note: In this excerpt from her latest book, Ducks in a Row, Canadian-based author, Sue Robins explains the power of storytelling for everybody invested in health care—patients and clinicians alike.  A well-told story, Robins explains, has the ability to...
Dr. Danny Sands: Participatory Medicine Can Cure Many Ills

Dr. Danny Sands: Participatory Medicine Can Cure Many Ills

by | Sep 12, 2022

Embracing shared decision making in medicine will improve patient outcomes, reduce costs, increase health equity, and even help alleviate clinician burnout, Danny Sands, MD, co-founder of the Society for Participatory Medicine, said in a recent podcast interview. Erin...
Patients and the Diagnostic Journey: Finding Specialists

Patients and the Diagnostic Journey: Finding Specialists

by | Sep 7, 2022

The journey to diagnosis for patients, particularly those living with complex health conditions remains challenging for patients, their loved ones, and their physicians. As frontline experts on the diseases and conditions affecting their lives, patients and family...
The Keys to Good Relationships With Your Care Teams

The Keys to Good Relationships With Your Care Teams

by | Aug 23, 2022

Being born with cystic fibrosis, a progressive, genetic lung disease, I have had countless health encounters throughout my life. Through these experiences I have learned the power that lies in self advocating for my health in the clinic setting with my doctors and...
Participatory Medicine is Where You Find It

Participatory Medicine is Where You Find It

by | Aug 17, 2022

Collaborations across healthcare can save lives – especially when working with patient advocates. For a person like me, who is impacted by a rare, neurological, and incurable disease, it’s my mission to ensure that patients’ perspectives are represented  early...

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