by Geri Lynn Baumblatt | Mar 19, 2020
“Information therapy” has long been part of the participatory medicine mindset. (See our 2007 post that mentions Josh Seidman PhD’s Center for Information Therapy – he went on to be president of SPM.) In the COVID-19 era, now more than ever,...
by e-Patient Dave | Mar 17, 2020
“The cure for anxiety is knowledge and preparation.” That line is from the hip and edgy (and smart) Stanford doc @ZDoggMD in the amazing live conversation on YouTube he had with his 12 year old daughter last Friday. Here are some resources. Society for...
by e-Patient Dave | Mar 9, 2020
Six weeks ago we hosted the Patient/caregiver letter supporting proposed HHS rules on improving flow of our data. It’s a crowdsourced collection of stories of how patients suffered, were harmed, incurred costs or delays because their own health data wasn’t...
by John M. Grohol, Psy.D. | Jan 28, 2020
Epic is a widely used Electronic Health Record (EHR) system by thousands of hospitals across the United States. There’s a very good chance that your physician uses Epic software in their everyday practice. Among many other tasks, Epic’s software helps...
by John M. Grohol, Psy.D. | Dec 15, 2019
In a piece entitled, “Why Doctors Need to be on Twitter,” Jack Turban, MD and Jessica Gold, MD seem to have transported back in time to a world where e-patients don’t exist. The piece argues that because Twitter is such a cesspool of misinformation...
by e-Patient Dave | Oct 14, 2019
Hello, SPM members! – And honored guests, perhaps soon to be members. Join here. :-) Over the past few weeks, I have received quite a few inquiries about livestreaming opportunities for our conference in Boston, Tuesday, October 15. If you can’t attend...
by Michael Millenson | Oct 4, 2019
(This post originally appeared Oct. 2, 2019 on EngagingPatients.org) The dating site Match.com wants to help singles “find the kind of relationship they’re looking for” by providing “the tools they need to help take the lottery out of love.” The Centers for Medicare...
by Narinder Singh | Jul 19, 2019
This is Part 4 of a four part series, introduced Monday, based on my family’s experience with our mother’s unexpected and dramatic ICU stay and bilateral lung transplant. [ Go to Part 1 | Part 2 | Part 3 ] [Download the Complete Family’s Guide as a PDF]...
by Narinder Singh | Jul 18, 2019
This is Part 3 of a four part series, introduced Monday, based on my family’s experience with our mother’s unexpected and dramatic ICU stay and bilateral lung transplant. [Go to Part 1 | Part 2 ] [Download the Complete Family’s Guide as a PDF] If...
by Narinder Singh | Jul 17, 2019
This is Part 2 of a four part series, introduced Monday, based on my family’s experience with our mother’s unexpected and dramatic ICU stay and bilateral lung transplant. [Go to Part 1]. [Download the Complete Family’s Guide as a PDF] After the...
by e-Patient Dave | Jun 1, 2019
On June 4, 1919, Congress passed the 19th Amendment, giving women equal voting rights. (It was ratified by ¾ of the states, just in time for the 1920 elections.) Activists for patient power (and partnership) have often pointed to parallels of our movement with women...
by Danny Sands, MD | May 2, 2019
On Tuesday, April 30, a roomful of health care insiders enjoyed a series of rapid-fire, TED-esque talks, interviews, and panels by leading health care voices at The Atlantic Summit on Health Care (#AtlanticPulse). Several SPM members attended the forum, and we...
by Sarah Krüg | Mar 12, 2019
“Vague but exciting…,” was the response Sir Tim Berners-Lee received when he submitted a proposal for an information management system (aka the world wide web) to his supervisor in March of 1989. Three decades later, we have hit a key milestone, and approximately half...
by e-Patient Dave | Feb 21, 2019
The famous TED Talks site TED.com is the holy grail of many evangelists. Aside from the extraordinary visibility it gives your message, and aside from the validation of your message (the site’s tagline is “Ideas worth spreading”), it means...
by e-Patient Dave | Jan 31, 2019
Sara RIggare, one of the earliest members of our Society, has just received a great honor: Fokus magazine (“Sweden’s Time”) has named her “Swede of the Year” in medicine. In the photo from the award ceremony she seems appropriately...
by e-Patient Dave | Dec 5, 2018
In Chicago, SPM members have been getting together for regular meetups. It’s been fun and exciting, and lots of us think it would be great to offer the idea to other areas. Here’s how we started and how we do it – take it on and make it your own! This time...
by e-Patient Dave | Dec 4, 2018
Our Society for Participatory Medicine is growing in membership and in projects and teams. If you’re a member, have you considered leading a team? If you’re not, have you considered joining? The message below was posted last weekend by co-founder and...
by e-Patient Dave | Nov 2, 2018
Lifetime SPM member Deborah Greenwood is a diabetes educator who has long believed in patient empowerment and participatory medicine. SPM welcomes posts authored by our members – see the guidelines. November is Diabetes Awareness Month. And November 14, 2018 is...
by Sue Woods | Oct 29, 2018
On October 17th, the Society enjoyed their 2nd conference in Boston. Filling a larger room than last year, attendees – in person and virtual – enjoyed an impressive lineup of speakers. The passion in the room was palpable. Much more to come on that. A...
by Casey Quinlan | Oct 20, 2018
This will be the third, and last, in my short series on attending the Cochrane Colloquium in Edinburgh in September of this year. In the first post, I talked about what that conference was like; in the second, I shared an overview of Cochrane as a global movement to...
Learning Health Systems Empower Every American to Actually Make America Healthy Again Together, Part 2May 29, 2025
More important than Time and MoneyFebruary 5, 2025
We Can Change the US Healthcare System: Your Health, Your VoiceJanuary 15, 2025
The Killing of Brian Thompson was AwfulDecember 30, 2024
Recent Comments