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Participatory Personalized Medicine in Action: Pharmacogenomics in Primary Care

by Ileana Balcu | Feb 11, 2017

This is a post by SPM Board Member John Hoben – Business Development Director at Bio-Optronics. Hoben’s passion is reconfiguring medical industrial complex assets and transactions from sickness response to true preventive delivery. This entails focusing on...

From Regina Holliday’s blog: on Patient Advocacy

by Ileana Balcu | Sep 29, 2016

Beautiful and comprehensive blog post from Regina Holliday about different types of patient advocates, the evolution of the patient as speaker, consumer, policy-igniter and her own work....

Last call: Vote for patient activists (and more) at Health 2.0 next week

by e-Patient Dave | Sep 22, 2016

In July we invited you to vote on a large group of patient activists, to select finalists in Health 2.0 conference’s tenth annual conference: Health 2.0: first conference to offer Patient Activist awards. Vote! What a gathering this will be: travel expenses for...

e-Patients as journal authors: Sean Ahrens self-experiment published in a major journal

by e-Patient Dave | Aug 8, 2016

We’d love to start a list of other patient-authored papers and posters – let us know in the comments! We know of Dana M. Lewis & Scott Leibrand’s poster about #OpenAPS in June – who else?? We’ve written before about e-patient Sean...

Teaching Health Communication with Participatory Medicine Highlights

by Ileana Balcu | Jul 30, 2016

In the Spring of 2016 I had the opportunity to teach the course New Media and Health Communication for an undergraduate class at The College of New Jersey. The class, designed by Dr. Yifeng Hu, already included an introduction to participatory medicine and patient...

Eric Dishman’s transformational speech on his last day at Intel: “Knowledge is survival”

by e-Patient Dave | Jun 7, 2016

https://vimeo.com/169280480 I’ve known Eric Dishman for about five years, because we’re both kidney cancer patients. I’ve known that he’s a really sharp thinker, and a high-ranking executive at Intel, deeply interested in and involved in their...