by e-Patient Dave | Sep 6, 2013
Clarification 9/7: The FAQ posted below is of course authored by my hospital, not by me. Several people misunderstood so I edited this and the headline. On Wednesday I posted about the roll-out of OpenNotes to over a million patients and families. That post arose when...
by e-Patient Dave | Sep 4, 2013
Updated Sept. 6: I’d forgotten that as we posted in June, Cleveland Clinic announced open access too, adding a half million patients to the total. Big news is emerging from the OpenNotes® project: big institutions are making patient access to the medical record...
by Alicia Staley | Aug 25, 2013
SPM member Erin Moore (@EKeeleyMoore) is one heck of an activist parent. She sees the future, she has a stake in it – a kid with a chronic disease – and like many of us, she’s not waiting around for someone else to make it happen: she’s engaged...
by Ileana Balcu | Aug 13, 2013
Guest blogger Peggy Zuckerman tells us a story about a young competent doctor and how transparency and openness is key to giving better care. Peggy Zuckerman never intended to be a patient advocate, not even a patient! But after her diagnosis with a “tiny,...
by e-Patient Dave | Jul 31, 2013
I’ve just attended John Moore MD’s “defense,” as they call it – his presentation of the results from his PhD thesis project at the M.I.T. Media Lab. The project has participatory medicine written all over it: it’s about Developing...
by Susannah Fox | Jul 19, 2013
Susannah: On June 14, 2013, I attended the National Meeting on Promoting and Sustaining Collaborative Networks in Pediatrics where we discussed topics covered in a special issue of Pediatrics, among other initiatives and trends. Justin Vandergrift was one of the...
by Ileana Balcu | Jul 1, 2013
Guest blogger Peter Elias, MD describes his journey on opening up his office notes to patients. Peter is a family physician in active primary care practice since 1977, co-founder of a group practice now owned by a hospital-based multi specialty group, with a...
by Kathleen O'Malley | Jun 6, 2013
This guest post is from SPM member Erin Moore @ekeeleymoore and is reproduced from her blog, 66 Roses, which is dedicated to finding a cure for cystic fibrosis. There was a healthcare conference last fall that I desperately wanted to go to. The conference was for...
by e-Patient Dave | May 30, 2013
See my post about this on Forbes. This is as close as a call to arms as we ever get around here, given how collaborative we are. But this is a case of bad science and/or bad reporting, with clear harm to the participatory medicine movement. Whatever the reason, it...
by David Harlow | May 20, 2013
Going public recently with her story of a prophylactic double mastectomy after testing positive for BRCA1 (a gene linked to breast cancer) via an op-ed piece in the New York Times, Angelina Jolie is clearly trying to get the message out that radical choices must...
by David Harlow | Apr 24, 2013
With the tireless help of Adrian Gropper, and the counsel of executive committee members Michael Millenson and Danny Sands who went above and beyond, and our President Sarah Krüg, the Society for Participatory Medicine’s Public Policy Committee completed a...
by Danny van Leeuwen | Apr 11, 2013
Are clinicians from Mars and e-Patients from Venus? My experience is e-patients and clinicians can agree that they seek best health. Yet there is such a disconnect, such frustration, so much of the time. Participatory medicine strives to bridge the gaps between...
by Danny van Leeuwen | Feb 26, 2013
The overlap between the clinical aspects of our health journey and behavior of health team members occurs most often in medication management. Effective medication management depends on empowered, informed patients and caregivers prepared for clinician visits, and...
by e-Patient Dave | Jan 27, 2013
Guest post by Elaine Waples, one of our new (today) members of SPM (with her husband Brian Klepper). This story illustrates one of the core dysfunctions in American medicine today – lack of coordination – and makes a compelling case for patients and...
by e-Patient Dave | Jan 17, 2013
It’s less common today but people used to think empowered patients were anti-doctor. One part of our response on this blog was to point out the many clinicians who are e-patients themselves, as in Let’s hear it for the d-patient e-patients (with dozens of...
by David Harlow | Jan 14, 2013
The Health IT Policy Committee of the Office of the National Coordinator of Health IT released its proposed Stage 3 objectives for Meaningful Use. “Eligible Providers” that meet these objectives share in the federal electronic health record incentive...
by e-Patient Dave | Dec 29, 2012
This encouraging news is adapted from the November cover story of Radboud University’s magazine Radbode (PDF, in Dutch, 1.6MB). Thanks to @LucienEngelen, initiator of this project, for forwarding it to us. Not surprisingly, Lucien’s also the creator of the...
by e-Patient Dave | Dec 24, 2012
In the Society for Participatory Medicine we talk about professionals and patients being full partners in care. And sometimes, as in any partnership, the two part. Have you ever “fired” anyone? Before it got to that point, did you express your concern...
by e-Patient Dave | Dec 18, 2012
Most of our readers are familiar with the brief animated video introduced last summer by ONC, the health IT group in the US government. (If you haven’t seen it, you can watch it below, in long and short versions.) Now they’ve introduced a new poster (click...
by Susannah Fox | Dec 3, 2012
Warning: this doesn’t end well. Not for anyone in the story. Unless it changes you, as it did me. Jonathan Welch, MD, teaches at Harvard Medical School and practices in the ER at Brigham and Women’s Hospital in Boston. But, as is often the case in life, the...
Learning Health Systems Empower Every American to Actually Make America Healthy Again Together, Part 2May 29, 2025
More important than Time and MoneyFebruary 5, 2025
We Can Change the US Healthcare System: Your Health, Your VoiceJanuary 15, 2025
The Killing of Brian Thompson was AwfulDecember 30, 2024
Recent Comments