By Narinder Singh | July 16, 2019
This is Part 1 of a four part series, introduced yesterday, based on my family’s experience with our mother’s unexpected and dramatic ICU stay and bilateral lung transplant. [Download the Complete Family’s Guide as a PDF] Even the air in the waiting... 
By e-Patient Dave | December 26, 2018
Editor’s note: this guest post by SPM member Gail Phillips shares the odyssey that led her through numerous related disciplines, eventually discovering our society and our conference last October. Members can submit guest posts to our blog (guidelines). Join SPM... 
By e-Patient Dave | July 26, 2018
A new article in the open access BMC journal Implementation Science reviewed 48 articles about involving patients in projects that redesigned small and large parts of healthcare delivery. Conclusion: higher levels of engaging patients in the work led to higher level... 
By Carla Berg | February 14, 2018
Editor’s Note: This is a first installment (we hope) in a series about an all-too-real-life medical drama experienced by a former SPM board member and longtime sci-tech journalist Carla Berg-Nelson (aka “Carla B.”). There is much to learn here about being an... 
By e-Patient Dave | January 16, 2018
Guest post by SPM member Mark Sullivan, MD, PhD, who is Co-Director of Behavioral Health Services at the University of WashingtonCenter for Pain Relief. We welcome guest posts from SPM members – see guidelines here. I joined the Society for Participatory... 
By e-Patient Dave | September 22, 2017
This may be the best short talk ever about the importance of participatory medicine. SPM’s past president Sarah Krüg (@SaraKrug1) recently did a 10 minute TEDx Talk in Brussels. It’s one of those rare ones that’s pretty riveting. Watch it. Join us. Our Society for... By Danny van Leeuwen | March 23, 2017
I’m an old hippie [left]. I’ve lived in many houses and on a farm (commune?) with other people. Regularly we heard, “I agreed to what? No I didn’t.” “Since when is that a rule?” I, and then my wife and I, developed skill in... By Ileana Balcu | July 30, 2016
In the Spring of 2016 I had the opportunity to teach the course New Media and Health Communication for an undergraduate class at The College of New Jersey. The class, designed by Dr. Yifeng Hu, already included an introduction to participatory medicine and patient... By John M. Grohol, Psy.D. | April 15, 2016
Next in our #DocTom10 series, which started here. I first met Tom Ferguson in 1994 online (where else?) when he reached out via email to chat about online support groups. I was still in graduate school at the time, and he had come across my indexes of Internet... By e-Patient Dave | April 13, 2016
Third in our #DocTom10 series, which started here. Yesterday I asked that you download Ferguson’s white paper, the manifesto he was working on when he died unexpectedly, ten years ago tomorrow. Today we’ll look at the preface. The lost section:...
Call to action! Second annual Doc Tom award nominations now being accepted!September 9, 2019
A Family’s Guide to the ICU, Part 4: The Human Aspect of CareJuly 19, 2019
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