by Danny Sands, MD | Apr 9, 2020 |
Prologue from Dr. Sands: I trained in clinical informatics because of my belief that we needed to better empower healthcare professionals with information technology so they could take better care of patients, and spent many years creating and implementing these... 
by Narinder Singh | Jul 16, 2019 |
This is Part 1 of a four part series, introduced yesterday, based on my family’s experience with our mother’s unexpected and dramatic ICU stay and bilateral lung transplant. [Download the Complete Family’s Guide as a PDF] Even the air in the waiting... 
by e-Patient Dave | Dec 26, 2018 |
Editor’s note: this guest post by SPM member Gail Phillips shares the odyssey that led her through numerous related disciplines, eventually discovering our society and our conference last October. Members can submit guest posts to our blog (guidelines). Join SPM... 
by e-Patient Dave | Jul 26, 2018 |
A new article in the open access BMC journal Implementation Science reviewed 48 articles about involving patients in projects that redesigned small and large parts of healthcare delivery. Conclusion: higher levels of engaging patients in the work led to higher level... 
by Carla Berg | Feb 14, 2018 |
Editor’s Note: This is a first installment (we hope) in a series about an all-too-real-life medical drama experienced by a former SPM board member and longtime sci-tech journalist Carla Berg-Nelson (aka “Carla B.”). There is much to learn here about being an... 
by e-Patient Dave | Jan 16, 2018 |
Guest post by SPM member Mark Sullivan, MD, PhD, who is Co-Director of Behavioral Health Services at the University of WashingtonCenter for Pain Relief. We welcome guest posts from SPM members – see guidelines here. I joined the Society for Participatory... 
by e-Patient Dave | Sep 22, 2017 |
This may be the best short talk ever about the importance of participatory medicine. SPM’s past president Sarah Krüg (@SaraKrug1) recently did a 10 minute TEDx Talk in Brussels. It’s one of those rare ones that’s pretty riveting. Watch it. Join us. Our Society for... by Danny van Leeuwen | Mar 23, 2017 |
I’m an old hippie [left]. I’ve lived in many houses and on a farm (commune?) with other people. Regularly we heard, “I agreed to what? No I didn’t.” “Since when is that a rule?” I, and then my wife and I, developed skill in... by Ileana Balcu | Jul 30, 2016 |
In the Spring of 2016 I had the opportunity to teach the course New Media and Health Communication for an undergraduate class at The College of New Jersey. The class, designed by Dr. Yifeng Hu, already included an introduction to participatory medicine and patient... by John M. Grohol, Psy.D. | Apr 15, 2016 |
Next in our #DocTom10 series, which started here. I first met Tom Ferguson in 1994 online (where else?) when he reached out via email to chat about online support groups. I was still in graduate school at the time, and he had come across my indexes of Internet...
Fostering Solidarity on the Front Lines Through StoriesNovember 27, 2020
Person-First Safe Living in a Pandemic #1November 16, 2020
Everyone-Included ResearchNovember 9, 2020
Checking the Compass of Participatory MedicineJuly 10, 2020
The Health Story Collaborative & the Power of Healing NarrativesJune 10, 2020
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