e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Announcing SPM’s new Doc Tom Awards. Nominations are open!
It's here: our Society's new Doc Tom Awards are open for nominations! Spread the word, and join us at our second annual conference on October 17 for the award! If you don't yet know about Doc Tom Ferguson, founder of the e-patient movement, read our /DocTom page. To...
Study: Engaging patients in co-design works. Join us at our #SPM2018 conference Oct 17!
Engaging patients in care design leads to higher level results – the kind of thing you’d hire big fancy consultants to do. Who knew?? We did!
Patient Ownership of Data?
Do you care about health data ownership and want to stay abreast of national initiatives to wrestle with and solve ownership issues? If so, this post is for you. What does it mean to own my health data? Is it like owning my car or my house? Is it like a copyright? Do...
Facebook patient privacy issue – important #BCSM Twitter chat TONIGHT, July 16 9pm ET
TONIGHT: 9 pm Eastern time. #BCSM Twitter chat on the latest Facebook privacy issue. This time the data leaked is from a patient group. FB says it's a nothingburger. What do you think? Facebook has a record of privacy leaks. The poster shown here (click to enlarge)...
Originally published six years ago - as good as new today! The empowered patient, skeptical of professional authority, is not a new phenomenon: s/he was actually created by the American Revolution. Reading through historian Gordon Wood’s Pulitzer Prize-winning...
Medicare Holds Out Promise of Health Record Access Revolution
This is the second of two posts about this important policy issue regarding portability of our medical records. The first provided background, with link to a PDF of the comments SPM submitted, largely authored by Michael Millenson, who provides this essay for context....
SPM’s comments on important proposed CMS interoperability rules
This is the first of two posts about this important policy issue regarding portability of our medical records. The second is by Michael Millenson, who did the lion's share of this work, as noted below. Our Society's Advocacy and Policy chair Vera Rulon @VRulon has...
Request: Harnessing the patient voice from the ward to the boardroom
I know there are numerous initiatives along these lines so please circulate this widely. Help publicize and share what others are doing to incorporate patient perspectives in the present and future of healthcare! I've received the following request from Luke...
SPM on TV in Hartford after last week’s “Better Health” conference
Email subscribers, I'm not sure the video below will come through to you - if it doesn't, click the headline to come see it online. http://www.wtnh.com/ct-style/the-better-health-conference-helping-to-change-healthcare-as-we-know-it/1236774613 Last week at the sixth...
Give Me My DaM Data::The Revolution
SPM advocates vociferously for patient ownership of their own data. Success would be revolutionary. But revolutions do not suddenly appear. They result from persistent long-term effort, strategy, and tactics. Key milestones often only appear in hindsight. The...
Skeptics ask why patients would even WANT their medical images. We asked on Facebook.
Skeptics ask why patients would even WANT to look at their medical images. We asked for true stories and they blew us away. Give us our data! ALL our data!
Cinderblocks 2018
Thanks to support from SPM Travel Fund I attended Regina Holliday's Cinderblocks Conference in Grantsville, MD. Still pound-for-pound the best conference going. Several days of local and national presentations about health, public health, and advocacy. Small, good...
