by Eric Bersh | Dec 14, 2022
“When someone is having an acute situation, that is not a teaching moment.” Peter Pitts I recently participated on a panel at the STAT Summit with two brilliant healthcare thought leaders, former FDA Associate Commissioner and current president of the Center for...
by e-Patient Dave | Nov 30, 2022
This post is about a paper I co-authored in JMIR in August with Bertalan Meskó MD PhD, Patient Design: The Importance of Including Patients in Designing Health Care. It’s challenging and perhaps a bit confrontational to conventional healthcare, because it...
by Eric Bersh | Jan 27, 2022
After a happy couple has been dating and in a stable relationship for a while, they often decide to take a traditional, next, more permanent step to the institution of marriage. They make an announcement to kick it all off: “We’re engaged!” When we hear about an...
by Amy Camie | Sep 21, 2021
Years before the first of my two breast cancer diagnoses, I shared live harp music in chemotherapy infusion units, spoke to support groups about the healing power of music, and developed a clinical trial exploring the effects of specific music on patients undergoing...
by Danny van Leeuwen | Nov 9, 2020
Person-included research, co-production, tragedy, grief, health equity, and relationships in life and research. Chat with Amy Price of Stanford and BMJ Proem Research follows life. Life comes before research. My diagnosis of Multiple Sclerosis preceded my need for...
by John M. Grohol, Psy.D. | Jan 28, 2020
Epic is a widely used Electronic Health Record (EHR) system by thousands of hospitals across the United States. There’s a very good chance that your physician uses Epic software in their everyday practice. Among many other tasks, Epic’s software helps...
by e-Patient Dave | Jan 26, 2020
Many people are asking if they can add their stories or their signatures. Please do so in comments! We’ll copy signatures into the body of the post as time allows. We, the undersigned, are patients, family caregivers and advocates who are desperate to receive...
by Carla Berg | Feb 14, 2018
Editor’s Note: This is a first installment (we hope) in a series about an all-too-real-life medical drama experienced by a former SPM board member and longtime sci-tech journalist Carla Berg-Nelson (aka “Carla B.”). There is much to learn here about being an...
by e-Patient Dave | Dec 1, 2015
Today’s Washington Post has a terrific, carefully researched, precise article – on the front page of the Health & Science section – about the reality of a good patient-clinician partnership: Does your doctor listen when you talk? by Suzanne...
by Ileana Balcu | Jun 17, 2015
Matthew S. Katz, MD, is the Medical Director of Radiation Oncology at Lowell General Hospital and a lifetime member of S4PM. He is former Chair of Communications Committee for the American Society for Radiation Oncology (ASTRO) and external advisor for Mayo Clinic’s...
by Nancy Finn | Apr 21, 2015
The Choosing Wisely® campaign was launched in 2012 by the ABIM Foundation to encourage patients and clinicians to think about the tests and treatment choices they are implementing or requesting, and to avoid those tests that have proven to be overused and...
by e-Patient Dave | Sep 5, 2014
I’m giving a talk in Vermont next week, to health IT workers, and in talking with the organizers we realized it would be great to give them a vision of WHY we’re doing this – some true stories of where patients benefitted from seeing the data in...
by Casey Quinlan | May 1, 2014
OpenNotesOne of our MD members, Peter Elias, tipped us off on our listserv to a post on KevinMD.com from a clinician who was expressing concern about the wisdom of OpenNotes, and fully sharing information with patients in general. Peter posted a comment, which we...
by Ileana Balcu | Dec 3, 2013
Radiation oncologist Matthew Katz is a lifetime member of SPM who blogs regularly for the American Society of Clinical Oncology and Mayo Clinic Social Media Health Network. In this guest post he offers his view of 23andMe, the personal genomics service that’s in...
by Susannah Fox | Oct 21, 2013
A cross-post from susannahfox.com… On Friday, I spoke at the Albert Einstein College of Medicine, along with Kevin Pho, MD. During a planning call, the symposium organizers had shared results from a faculty survey: Fully two-thirds do not use social tools on a...
by David Harlow | Feb 1, 2013
After years of delay, the federales finally finalized the HIPAA Privacy, Security, Breach Notification and Enforcement Rules. Introduction The Final Rule offers significant changes to patient rights and patient protections. (There is much more to the rule, but other...
by Michael Millenson | Dec 11, 2012
The new Patient-Centered Outcomes Research Institute (PCORI) has been asking different stakeholders about the most important issues to address with the hundreds of millions of dollars the quasi-governmental group will shortly be doling out in grants. Not surprisingly,...
by Kathleen O'Malley | Sep 27, 2012
This blogpost by Chuck Alston and Patrick McCabe originally appeared on the Health Affairs blog. Many thanks to SPM member Michael Millenson for alerting e-Patients.net to this piece. It has been 22 years since David M. Eddy — the heart surgeon turned...
by e-Patient Dave | Jul 28, 2012
What is the role of the patient? As we noted in April, TEDMED and the Robert Wood Johnson Foundation have designated “The Role of the Patient” as one of the twenty TEDMED Great Challenges for 2013, and the TEDMED site will host a big conversation about it...
by Susannah Fox | Jun 11, 2012
Before you read this post, think of a time when you had a crush on someone. Think about that swirl of emotions, the highs and the lows. That’s where I was a couple weeks ago, except it wasn’t about a person. I fell hard for Watson, IBM’s hot new outboard brain. I’d...
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