by e-Patient Dave | Nov 29, 2017
I’m way late in blogging this – too much travel and jet lag – but WOW was our Society’s first conference on October 25 a breakthrough event! Titled ““Participatory Medicine: Transforming the Culture of Care” (web page), it produced...
by e-Patient Dave | Nov 27, 2017
Why the Movement Needs a Breakthrough, and How You Can Help Guest post by SPM member Tyson Ortiz (right), a highly committed member of SPM who works in organizational culture change. His previous post, How I became an e-patient: through practice, with coaching (using...
by e-Patient Dave | Nov 16, 2017
The image above is from the blog post described below. SPM board member-at-large Peter Elias MD is a recently retired family physician who says he’s always practiced participatory medicine, long before he knew it had a name. He’s contributing a terrific...
by e-Patient Dave | Oct 24, 2017
It’s that time again! Our friends at the Patients View Institute GoPVI.org are again running their “impact awards.” I got to be present during the award’s sessions in DC last year, and it’s just terrific what they’re doing –...
by e-Patient Dave | Sep 22, 2017
This may be the best short talk ever about the importance of participatory medicine. SPM’s past president Sarah Krüg (@SaraKrug1) recently did a 10 minute TEDx Talk in Brussels. It’s one of those rare ones that’s pretty riveting. Watch it. Join us. Our Society for...
by e-Patient Dave | Aug 7, 2017
“To help inform patients of the best scientific knowledge…” “…as future physicians, they realize that part of their contract with society is to meet patients where they are and to help inform patients of the best of scientific knowledge about...
by e-Patient Dave | Aug 3, 2017
I’m taking the extraordinary step of rerunning, verbatim, an entire post from 2014 about this important development. Why? Because tomorrow an update is coming, and to fully appreciate the news, you need to appreciate the background. Here’s the original,...
by e-Patient Dave | Jul 12, 2017
On Thursday, at 5pm UK time / noon ET / 9 am Pacific, the BMJ will host a tweetchat under their #BMJDebate hashtag, adding to the ongoing debate about how and when patients can be compensated for their contributions to improving healthcare. Please read editor Tessa...
by e-Patient Dave | Jul 7, 2017
SPM past board member Michael Millenson has an important new commissioned essay in the BMJ spelling out some parameters of collaborative health, which might as well have been written as participatory medicine. Happily, they made it open access so patients can read it...
by e-Patient Dave | Jul 5, 2017
Short notice, but if you can join, please do – if you can’t make it, the archive will be published. EUPATI (European Patients’ Academy) has a 90 minute webinar today, July 5, at 11 am ET, 8 am PT, 5 pm Central Europe. To register click the graphic or...
by e-Patient Dave | Jun 21, 2017
As his TEDMED profile says, Dr. Isaac (Zak) Kohane, MD, PhD, co-directs the Center for Biomedical Informatics at Harvard Medical School. He’s a long-time believer in the power of well managed information to help create well managed care. Many members of SPM got...
by e-Patient Dave | Jun 13, 2017
What would you think if your fire department had expensive, snazzy fire trucks that failed to show up when needed? What would you think if a neighboring town had less fancy equipment but was incredibly dependable about using what it had? That’s pretty much the...
by e-Patient Dave | Jun 9, 2017
Sunnie Southern is an avid activist for better care, a proactive patient (very responsible), a long-time member of our Society for Participatory Medicine, and a good friend with an irrepressibly bright disposition. As I often say, “I’ve never seen anyone...
by e-Patient Dave | Jun 7, 2017
We in the Society for Participatory Medicine are in many stages of awakening to our potential as active participants in the health system. Some have a particular focus on a disease or a technology; many of us come to it through our own experience (good or bad) as a...
by e-Patient Dave | May 2, 2017
This post by SPM member MaryAnne Sterling is a thrilling sequel to our ongoing posts about CCCC (an organizational member of our Society) and its support for e-patients at their annual summit. MaryAnne is CEO of Sterling Health IT Consulting. She’s a healthcare...
by e-Patient Dave | Apr 24, 2017
SPM president Joe Ternullo, formerly of Partners Healthcare, sent this letter to our members this week. It will also be posted as an editorial on the Journal’s site. Our Journal, begun as a grass roots initiative at the Society’s formation, is a crown...
by e-Patient Dave | Mar 29, 2017
In November we posted about an extraordinary development: NEJM Data Analysis Challenge: can others create value by seeing researchers’ data? The project has come to fruition, and the big event (free) is next Monday-Tuesday. The question for us: What’s the impact...
by e-Patient Dave | Mar 27, 2017
An announcement today in Europe (press release below) brings a new angle to the copious US coverage of drug pricing, such as predatory pricing of the EpiPen and the smirking, seemingly sociopathic Martin Shkreli. For the drug described below, the Médecins du Monde...
by e-Patient Dave | Mar 20, 2017
Please cite this post as “by Dave deBronkart, Marilyn Mann and Peter Elias MD” or, on Twitter, “@ePatientDave, @MarilynMann & @PHEski.” Our blog software only allows listing one author but they provided 2/3 of the content. The medical news...
by e-Patient Dave | Mar 3, 2017
March 1, 1992. 25 years ago. Yesterday I asked When was “Enriching the relationship by inviting the patient perspective” published? The words in that paper’s abstract [right] could have been written today – literally every word. It was printworthy a...
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