by e-Patient Dave | Oct 25, 2015
Ah, the world of social media. This morning’s Boston Globe “Spotlight” investigative team (which won a Pulitzer in 2003) has this, citing local superstar hospitals Massachusetts General and its sister hospital, Brigham & Women’s. Within an...
by e-Patient Dave | Oct 22, 2015
Here’s something I’ve never done: I’m capturing a comment from this blog five years ago and making it a post of its own, so it’s easier to find, because I think this is going to be more and more of an issue. It’s clearer and clearer that,...
by e-Patient Dave | Oct 20, 2015
There can be no question that Stanford Medicine XÂ is, head and shoulders, the most patient-oriented medical conference in the world. Susannah Fox first wrote about it here in 2012 after the first annual event, and it’s gotten better every year. I agree with what...
by e-Patient Dave | Oct 7, 2015
From the Health 2.0 conference in Silicon Valley yesterday – the best tweet and slides EVER that illuminate the difference between medicine’s view of the problem and patients’ experience. SPM co-founder Susannah Fox took pictures of two excellent...
by e-Patient Dave | Oct 2, 2015
Yesterday super-e-patients Regina Holliday, Michael Seres and I spoke on a webcast titled “End-to-End Patient Engagement that Drives Loyalty and Outcomes,” hosted by Liz Boehm of Vocera.com’s @EINHealth Experience Innovation Network. Frankly, we...
by e-Patient Dave | Sep 22, 2015
We’ll update this post as time allows, but: SPM board member (and my fellow kidney cancer patient) Peggy Zuckerman will be on the NBC Nightly News tonight (9/21). Look up the time for your local channel. See also our post this month about her participation at...
by e-Patient Dave | Sep 1, 2015
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here’s how to become a Society member, individual or corporate. Our publications: This...
by e-Patient Dave | Aug 17, 2015
The GetMyHealthData site was taken down at the end of 2022. Updated links here go to the page’s history on Archive.org. Please see my long-overdue post contributing to the @GetOurHealthData movement, on their blog. The more I’ve thought about all the...
by e-Patient Dave | Aug 3, 2015
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here’s how to become a Society member, individual or corporate. Our publications: This...
by e-Patient Dave | Jul 6, 2015
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here’s how to become a Society member, individual or corporate. Our publications: This...
by e-Patient Dave | Jun 15, 2015
Today (11:59pm ET) is the deadline for public comments on the proposed rollback of “Meaningful Use 2” regulations for patient access to their medical records. SPM feels that this is a major issue for enabling patient-provider partnerships; as SPM co-chair...
by e-Patient Dave | May 12, 2015
The advo-cacy of individual SPM members is gaining increasing visibility in the mainstream media, driving home the human impact of policies that help – or don’t help – patients be active contributors to their families’ health and care. This is...
by e-Patient Dave | Apr 18, 2015
It’s often hard for our movement to get major media attention, but it looks like it’s happening: things are heating up on the “empire strikes back” front that we reported on twice this week. Friday’s New York Times, page A30, carried an...
by e-Patient Dave | Apr 13, 2015
Friday evening I got a tweet from SPM member Sherry Reynolds about something that had just happened in Washington. Today it unfolded. (Don’t miss her comment, too, about the history of this issue and her role in it.) Change can provoke upset. Technological...
by e-Patient Dave | Apr 10, 2015
Perhaps it’s time for an argument about how we’re doing this. Many of us in the Society for Participatory Medicine have long noted that what we’re up to here is nothing less than full-bore culture change. In my own speeches I often note that culture...
by e-Patient Dave | Apr 8, 2015
National Survey Also Shows 87% Think Health Information Exchange Should be Free First paragraph updated next day In case you missed it last month, there was an unprecedented, huge moment in SPM’s history – we collaborated in a national survey of...
by e-Patient Dave | Apr 2, 2015
SPM member/legend Regina Holliday, a powerful force for grass roots empowerment and creator of The Walking Gallery of Healthcare, got whooping cough (pertussis) this winter, despite having been vaccinated just a few years earlier. The UK magazine Pharma Times...
by e-Patient Dave | Feb 17, 2015
Dr. Donald Lindberg, long-time director of the National Library of Medicine, is surely the single most-quoted authority from “Doc Tom” Ferguson’s e-Patient White Paper. In almost every speech I’ve given in the past five years I’ve used...
by e-Patient Dave | Feb 12, 2015
Our Society for Participatory Medicine is all about effective patient-clinician partnerships, and to us that simply requires patient access to all information about the case. As SPM co-founder Dr. Danny Sands often says in his speeches, “How can patients...
by e-Patient Dave | Feb 11, 2015
This is a great week for SPM, for our colleagues at the Stanford Medicine X conference, and for everyone else who’s been working for years to shift medicine’s thinking about the role of the patient: Yesterday the BMJ (formerly British Medical Journal)...
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