by e-Patient Dave | Feb 2, 2015
LADIES AND GENTS, YOUR ATTENTION PLEASE. The famous @HurtBlogger, chronic pain patient Britt Johnson, has announced that she will LIVE TWEET 48 hours of “her chronic life,” MONDAY AND TUESDAY, Feb. 2-3. She has no idea what will happen – might be...
by e-Patient Dave | Jan 27, 2015
There are times in a movement when value is revealed and recognized, and you know something real is happening. In the engaged-patient movement, the first I noticed was when Amy Tenderich’s Diabetes Mine blog (and its community) was acquired several years ago....
by e-Patient Dave | Jan 23, 2015
I’m beyond thrilled. Way beyond thrilled. This is going to take some figuring out, but is this what we’ve been striving toward, or what?? For years we’ve written here about the OpenNotes study (MyOpenNotes.org), funded by the Robert Wood Johnson...
by e-Patient Dave | Jan 18, 2015
Cross-posted from my personal blog yesterday On Twitter Friday night I learned from Dr. Sachin Jain of a November article that should be of interest to all of us who want to work toward full patient and family engagement in all aspects of medicine. To be sure, the...
by e-Patient Dave | Jan 15, 2015
One of the California Health Care Foundation’s regular projects is iHealthBeat, “Reporting technology’s impact on healthcare.” Wednesday they released a five minute podcast on patient communities, which are of course a core activity of engaged...
by e-Patient Dave | Dec 29, 2014
Our movement seems to be entering a turning point, and today Paul Levy’s blog had a great example. The change is embodied by the 2015 theme of our e-patient conference buddies at Medicine X: “This is the year of doing.” In my view this means two...
by e-Patient Dave | Dec 22, 2014
E-patients know that social media can be a potent tool for spreading the movement, spreading the message, and connecting with others. Some of us are better at it than others; if you’re looking for someone to follow who does it well, try SPM member and Medicine-X...
by e-Patient Dave | Dec 3, 2014
Edited an hour later – added Business Impact section at end Healthcare providers who are tracking patient experience and patient satisfaction, take note: a new study reported yesterday in Science Daily provides evidence that we patients really like it when we...
by e-Patient Dave | Dec 2, 2014
Cross-posted from my own site. This is about a free, non-commercial event that’s intended to be a radical exploration of a new way to discuss participatory thinking with people who don’t live in health policy circles – ordinary citizens! ______ For...
by e-Patient Dave | Nov 7, 2014
Susannah Fox, long one of our most popular and prolific bloggers, is roaming to wider audiences these days. She’s entrepreneur-in-residence at Robert Wood Johnson, she has her own site, and she’s just started writing on the hip-hip site Medium.com....
by e-Patient Dave | Oct 14, 2014
I could smack myself for not noticing this earlier, but it happened while I was at the ESMO conference (the “European ASCO” cancer conference) in Madrid last month: Amy Dockser Marcus has another great piece on how medicine is truly starting to engage with...
by e-Patient Dave | Oct 6, 2014
Yesterday at the New York Academy of Medicine was the first of Jessie Gruman’s two remembrance events, which we blogged about. Here’s a view of the gathering, which was followed by a reception. It was a fitting, moving, great tour through her life, with...
by e-Patient Dave | Sep 16, 2014
Today in our Society’s journal, SPM co-founders Joe and Terry Graedon of PeoplesPharmacy.com posted something I couldn’t agree with more: e-Patients Never Retire That’s kinda by definition, eh? But there’s an uppity Sixties edge to this, and...
by e-Patient Dave | Sep 16, 2014
On my own site I have a (loose, rough, poorly managed) list of patient communities, gathered ad hoc, as time allows. Today I posted a new contribution of a different sort – the experiences of a prostate cancer patient I met at a speaking event last week in...
by e-Patient Dave | Sep 10, 2014
Students of medicine (surely most MDs) will know the name Larry Weed, but I didn’t until a few years ago on this blog, when I learned that in 1999 our founder “Doc Tom” Ferguson gave Weed an Outstanding Achievement Award. In the late 1960s Dr. Weed...
by e-Patient Dave | Sep 7, 2014
Regular readers may recall SPM member Zack Berger MD PhD’s July post here The pledge of the patient-centered physician. Zack is one of the many SPM members attending the Stanford Medicine X conference this weekend and sends this Saturday night report,...
by e-Patient Dave | Sep 5, 2014
I’m giving a talk in Vermont next week, to health IT workers, and in talking with the organizers we realized it would be great to give them a vision of WHY we’re doing this – some true stories of where patients benefitted from seeing the data in...
by e-Patient Dave | Aug 18, 2014
We reported five weeks ago about the passing of Jessie Gruman, one of the greatest figures in our movement, founder of the Center for Advancing Health (CFAH), founding co-editor-in-chief of our Journal of Participatory Medicine, and much more. CFAH has since expanded...
by e-Patient Dave | Aug 9, 2014
This article was part of the big Health Affairs issue “New Era of Patient Engagement” (Feb 2013) which Ileana Balcu blogged about at the time. I’ve long been a fan of the Patient Activation Measure, which IÂ wrote about here three years ago in The...
by e-Patient Dave | Aug 1, 2014
We’ve often written here about the OpenNotes study (here’s a site search), which documented that when patients can see what their clinicians wrote, the sky doesn’t fall; instead, all kinds of good things happen. This is game-changing, even...
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