by e-Patient Dave | Jan 21, 2016
Our Society for Participatory Medicine is a partner with EngagingPatients.org. Founded in 2013, Engaging Patients is particularly focused on the communication aspects of participatory medicine. They asked us to share this announcement. EngagingPatients.org is pleased...
by e-Patient Dave | Jan 21, 2016
A Twitter chat this morning, prompted by SPM member John Sharp, produced a rapid and wonderful change in an ongoing problem: so often articles about patients aren’t open to patients. In this case it’s an intriguing new article today in the esteemed New...
by e-Patient Dave | Jan 18, 2016
Longtime readers of this blog know that for years Susannah Fox was its heart and soul. She was a devoted friend of “Doc Tom” Ferguson, creator of the e-patient concept in the 1990s, and for years at Pew Research she was the dependable guru of Pew’s...
by e-Patient Dave | Jan 1, 2016
One sign of a movement’s progress is when the establishment takes notice. This one’s a biggie: Regina Holliday’s Walking Gallery of Healthcare (Facebook) is in the January 16 edition of the AMA Journal of Ethics. A five page article! Click the image...
by e-Patient Dave | Dec 18, 2015
This blog welcomes guest posts from SPM members on relevant topics. One of our Society’s newest members, Susan Cournoyer, is a tech industry analyst, and is familiar with the concept of systems that are well designed or weakly designed, e.g. with a “single...
by e-Patient Dave | Dec 17, 2015
Big news: a multi-foundation $10 million grant will spread OpenNotes access to fifty million more patients! Nearly 20% of America will have full access to their providers’ visit notes, so they can review them from anywhere! Regular readers know we’ve...
by e-Patient Dave | Dec 14, 2015
Funny how a complex cultural discussion can get triggered by something as simple as a coffee mug. In our work to change healthcare’s beliefs about the patient-clinician relationship, nothing has had greater impact in less time than our post two weeks ago The...
by e-Patient Dave | Dec 13, 2015
As SPM advances the cause of patients as responsible drivers of their care, we sometimes hear denials or complaints from physicians who feel that e-patients needy, uninformed, self-centered burdens on busy clinicians’ time. Well, here’s a juicy...
by e-Patient Dave | Dec 10, 2015
One pillar of participatory medicine, as SPM co-chair Dr. Danny Sands often says, is access to our medical records: “How can patients participate if they can’t see what I see??” But a major impediment to free-flowing information is incompetence or...
by e-Patient Dave | Dec 9, 2015
Guest post by SPM member Katherine Kelly Leon @KatherineKLeon of the famous “SCAD sisters,” spotlighted in this 2011 post. This is about the “Your Googling” mug many of us discussed last week. Coffee mugs are like totems, spiritual items that...
by e-Patient Dave | Dec 5, 2015
You can’t make this stuff up. One of our most-commented posts ever was Monday’s The truth about that “your Googling and my medical degree” mug, about the coffee mug that went viral on Facebook this week. Well, some docs saw it and emailed, asking where to...
by e-Patient Dave | Dec 2, 2015
Our society’s open-access Journal of Participatory Medicine has not gotten enough play, so to speak, on this blog. Let’s try posting something about each article as it emerges. Email subscribers will receive them like any other post; online these posts...
by e-Patient Dave | Dec 1, 2015
Today’s Washington Post has a terrific, carefully researched, precise article – on the front page of the Health & Science section – about the reality of a good patient-clinician partnership: Does your doctor listen when you talk? by Suzanne...
by e-Patient Dave | Nov 30, 2015
I can’t tell you how many people have flung this Facebook item at me since last night, starting with my wife. :-) It’s already approaching 25,000 shares. (Update: at 11am ET on Dec 1 it’s up to 73,000 shares in 48 hours. I’d say it’s...
by e-Patient Dave | Nov 28, 2015
Dr. Danny Sands is one of the co-founders of our Society for Participatory Medicine, a great primary care physician, and a real thought leader who’s been doing this modern stuff for twenty years. (He co-authored the first journal paper on how to do...
by e-Patient Dave | Nov 27, 2015
This is a call for patient participation. We’re especially inviting members of our Society, but it’s open to anyone; feel free to circulate widely, especially to people with the conditions listed below! First, a bit of background, then the request. Regular...
by e-Patient Dave | Nov 17, 2015
SPM Past President Michael Millenson reports that the Urban Institute has published a paper he co-authored with Bob Berenson: The Road to Making Patient-Centered Care Real: Policy Vehicles and Potholes. Michael writes: This is the most comprehensive look ever at the...
by e-Patient Dave | Nov 4, 2015
As a social movement, we like to track the progress of the e-patient concept as it moves around the world. The e-patient message has been presented in at least fourteen countries that I know of. A few hours ago on Twitter, SPM member Matthew Holt, of the famous...
by e-Patient Dave | Nov 2, 2015
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn. Here’s how to become a Society member, individual or corporate. Our publications: This...
by e-Patient Dave | Oct 28, 2015
For whose benefit does the healthcare industry exist? For the investors, or the people whose needs are the reason for the industry? Facebook last night was celebrating a small but significant legal victory this week for the “gimme my DaM data” movement (“Data about...
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