by e-Patient Dave | May 18, 2016
We lost a great one today. Jody Schoger @JodyMS was one of the founders of #BCSM (breast cancer social media), the first patient community that started on Twitter and grew into a 501(c)(3) organization, bcsm.org. She passed on this morning, and Twitter is in tears....
by e-Patient Dave | May 16, 2016
The times, they are a-changin’: medicine is realizing there can be gold found on the internet, amid all the garbage that’s also there. Items: In 2014 a European government started buying Google Ads telling patients “Don’t Google it, check a...
by e-Patient Dave | May 4, 2016
Guest post by SPM member Liz Salmi of CCCC, an organizational member and supporter of our Society for Participatory Medicine. Note also (at bottom) that this event provides a model for other organizations to follow: patient participation is enabled by a foundation...
by e-Patient Dave | Apr 21, 2016
Next in our #DocTom10 series, which started here. If you haven’t read about Tom’s preface, and the Foreword by Pew Research, we urge you to. Remember, this was all written a decade ago. Today, Tom’s introduction. Please discuss! The key...
by e-Patient Dave | Apr 21, 2016
We’ve often written here about palliative care and end of life. (The two are not the same: you can have palliative care without having decided the end is near.) They’re, in a sense, the ultimate expression of patient-centered care, forcing the...
by e-Patient Dave | Apr 20, 2016
Next in our #DocTom10 series, which started here. Today we resume our review of the chapters of Tom’s White Paper. This Foreword stands on its own, with no comment needed, so we’ll just paste it in verbatim. Note: these numbers are from 2000, when the Web...
by e-Patient Dave | Apr 17, 2016
Next in our #DocTom10 series, which started here. This is a blessing – the first post here in two years by Susannah Fox. More about this at the end of the post – for now, let’s get to the good stuff. She originally posted this as a comment on...
by e-Patient Dave | Apr 14, 2016
Next in our #DocTom10 series, which started here. Ten years ago today, Tom Ferguson died unexpectedly. He was in the hospital at the University of Arkansas for Medical Sciences (UAMS), being treated for multiple myeloma. Tom’s work back then was captured on his...
by e-Patient Dave | Apr 13, 2016
Third in our #DocTom10 series, which started here. Yesterday I asked that you download Ferguson’s white paper, the manifesto he was working on when he died unexpectedly, ten years ago tomorrow. Today we’ll look at the preface. The lost section:...
by e-Patient Dave | Apr 12, 2016
Yesterday, in Honoring the memory of “Doc Tom” Ferguson, ten years after his death, we started a series of posts to mark his untimely demise and look back on his work. As we noted, at his death he was working on a project funded by Robert Wood Johnson’s Pioneer...
by e-Patient Dave | Apr 11, 2016
“Doc Tom” Ferguson, the source of our Society for Participatory Medicine, died unexpectedly ten years ago this week, April 14, 2006. In the coming days we’ll run a series of posts remembering his work and vision. Especially, we’re going to walk...
by e-Patient Dave | Apr 4, 2016
SPM member Sara Riggare is a PhD student at Karolinska Institutet in Stockholm and a member of the BMJ’s Patient Advisory Panel. She has Parkinson Disease, and is highly proactive in dealing with it. One thing some Parkinson patients do is non-contact boxing,...
by e-Patient Dave | Mar 29, 2016
The next in our series of “How I became an e-patient” posts. Tyson Ortiz joined a few months ago, having been introduced to us by fellow Lean practitioner Mark Graban. His story weaves together two concurrent threads: learning about a new aspect of Lean,...
by e-Patient Dave | Mar 22, 2016
We’ve often written here about open access medical literature (freely available) vs “paywalled” journals. It’s a controversial subject, and this guest post is about an idea I’ve never heard of: a hackathon to explore the subject. (In the...
by e-Patient Dave | Mar 1, 2016
It’s time again for the gigantic (50,000 people) HIMSS trade show – the Health Information Management Systems Society, in Las Vegas this year. These new SPM slides (on Slideshare) will be shown in the Consumer Engagement zone, summarizing our two surveys...
by e-Patient Dave | Feb 26, 2016
Guest post by John Hoben, who joined our Society in 2014 and has been a major contributor to discussions on our member listserv. He recently joined our board of directors. He has a particularly great story – he actually met Doc Tom long ago! – and I asked...
by e-Patient Dave | Feb 25, 2016
At 10 ET today (Feb 25) Donna will be a guest at the White House Precision Medicine Initiative, with several other members of our Society. Watch it on livestream. See also our post on the PMI event a year ago by then-president Nick Dawson. I’m thrilled to announce...
by e-Patient Dave | Feb 24, 2016
This is a hoot. I say this as someone who first blogged in 2008 about this process. On Tuesday March 1, Mayo Clinic will be streaming video of a colonoscopy, live on Periscope, in a broadcast they’re calling The #ScopeScope. Lee Aase, head of the Mayo Clinic Social...
by e-Patient Dave | Feb 23, 2016
Guest post by Mark Reifsteck [left], who joined our Society in 2014. Follow him on Twitter at @MarkWReifsteck. To become a member, individually or organizationally, see our Join Us page. It started innocently enough: I made an off-handed comment on the SPM member...
by e-Patient Dave | Feb 19, 2016
The Coalition for Compassionate Care of California (CCCC) is inviting e-Patients to apply for a scholarship to their 8th Annual Summit in Newport Beach, California, on May 12-13, 2016. The deadline to submit an application is March 10, 2016. Learn more and apply here....
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