by Sarah Krüg | Mar 12, 2019 |
“Vague but exciting…,” was the response Sir Tim Berners-Lee received when he submitted a proposal for an information management system (aka the world wide web) to his supervisor in March of 1989. Three decades later, we have hit a key milestone, and approximately half... 
by Casey Quinlan | Nov 16, 2018 |
SPM members Casey Quinlan (yes, yours truly) and Jan Oldenburg were part of a trinity of folks debating the idea of paying people for the data they contribute to the digital economy, in healthcare and in all other sectors. Here’s the full version of the... 
by e-Patient Dave | Aug 7, 2018 |
Editor’s note: This is a guest post by SPM member Nancy Michaels. Members of our society are welcome to submit guest posts – see the guidelines. I remember when Mr. Rogers’ Neighborhood first aired on the Public Broadcasting System. In my mind, he... 
by e-Patient Dave | Jul 15, 2018 |
TONIGHT: 9 pm Eastern time. #BCSM Twitter chat on the latest Facebook privacy issue. This time the data leaked is from a patient group. FB says it’s a nothingburger. What do you think? Facebook has a record of privacy leaks. The poster shown here (click to... by e-Patient Dave | Oct 28, 2015 |
For whose benefit does the healthcare industry exist? For the investors, or the people whose needs are the reason for the industry? Facebook last night was celebrating a small but significant legal victory this week for the “gimme my DaM data” movement (“Data about... 
by Casey Quinlan | Feb 3, 2014 |
For e-patients and others who list themselves on Texas Medical Institute of Technology’s SpeakerLink, this very meaty post by Society of Hospital Medicine founder and world-renowned leader of the hospitalist movement Dr. Bob Wachter is required reading. After... by e-Patient Dave | Jan 25, 2014 |
Here’s a new “must read” for people with a grim prognosis, submitted by Twitter friend @Scanman (Vijay Sadasivam), from the Tamil region of India: How Long Have I Got Left?, by Stanford neurosurgeon Paul Kalanithi. Seven years ago that was my... by Ileana Balcu | Jan 14, 2014 |
In this guest blog post, member Carly Medosch describes Lisa Adams whom she knows from social media. Lisa Adams was diagnosed with stage 4 breast cancer and documented her journey in social media. In another post below we describe the media firestorm that was caused... by e-Patient Dave | Jan 13, 2014 |
Update 9:20 pm ET: see important additions at the subhead below. When I wrote this today I didn’t have time to dig for excellent links like those. Thanks to Susannah Fox’s Twitter feed. One of the best social media patient figures I met, long ago, was... by Danny van Leeuwen | Oct 12, 2013 |
The relationship between health team members, especially people and their clinicians and caregivers, frequently arises as a topic of this blog. Let me share with you one of the values of Advocates. I work for Advocates as VP of Quality. We express our values...
Why I Joined SPM: Brad PowerJanuary 11, 2020
Apparently Only Doctors Can Help on Twitter?December 15, 2019
“My Data and Me”: Brenda Denzler’s amazing story at #FHIRDevDaysNovember 24, 2019
A Romanticised History of SPMNovember 23, 2019
Jane Sarasohn-Kahn: Social Determinants of Health – My Early Childhood Education and Recent Learnings, Shared at the HealthXL Global GatheringNovember 20, 2019
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