by Mary Hennings | Dec 30, 2024
The news cycle is moving on, but the killing of Brian Thompson was awful, no matter how one feels about the shortcomings of the American health care system. In a recent New York Times opinion piece, Andrew Witty, president of the UnitedHealth Group, wrote that no one...
by Eric Bersh | Aug 28, 2023
From shared-decision making, patient-centered care and value-based care to common technology innovations, healthcare players often describe how we aspire healthcare to be in concepts, buzzwords, branding and what has become common lexicon mentioned in conversations...
by Eric Bersh | May 24, 2023
At the Society for Participatory Medicine, we recognize trust and respect as a two-way relational dynamic essential to our mission to transform the culture of healthcare relationships so people can live their best lives (see our Participatory Medicine manifesto). And...
by Vasilliki E. Kalodimou, MD | Nov 1, 2021
Working as a health care researcher can be both rewarding and challenging, as daily we need to remember our commitment to our patients’ well-being and ethics to support treatment decisions. We are all familiar with deplorable abuses of human subjects in research, such...
by John M. Grohol, Psy.D. | Jan 28, 2020
Epic is a widely used Electronic Health Record (EHR) system by thousands of hospitals across the United States. There’s a very good chance that your physician uses Epic software in their everyday practice. Among many other tasks, Epic’s software helps...
by Sarah Krüg | Mar 12, 2019
“Vague but exciting…,” was the response Sir Tim Berners-Lee received when he submitted a proposal for an information management system (aka the world wide web) to his supervisor in March of 1989. Three decades later, we have hit a key milestone, and approximately half...
by Casey Quinlan | Nov 16, 2018
SPM members Casey Quinlan (yes, yours truly) and Jan Oldenburg were part of a trinity of folks debating the idea of paying people for the data they contribute to the digital economy, in healthcare and in all other sectors. Here’s the full version of the...
by e-Patient Dave | Aug 7, 2018
Editor’s note: This is a guest post by SPM member Nancy Michaels. Members of our society are welcome to submit guest posts – see the guidelines. I remember when Mr. Rogers’ Neighborhood first aired on the Public Broadcasting System. In my mind, he...
by e-Patient Dave | Jul 15, 2018
TONIGHT: 9 pm Eastern time. #BCSM Twitter chat on the latest Facebook privacy issue. This time the data leaked is from a patient group. FB says it’s a nothingburger. What do you think? Facebook has a record of privacy leaks. The poster shown here (click to...
by e-Patient Dave | Oct 28, 2015
For whose benefit does the healthcare industry exist? For the investors, or the people whose needs are the reason for the industry? Facebook last night was celebrating a small but significant legal victory this week for the “gimme my DaM data” movement (“Data about...
by Casey Quinlan | Feb 3, 2014
For e-patients and others who list themselves on Texas Medical Institute of Technology’s SpeakerLink, this very meaty post by Society of Hospital Medicine founder and world-renowned leader of the hospitalist movement Dr. Bob Wachter is required reading. After...
by e-Patient Dave | Jan 25, 2014
Here’s a new “must read” for people with a grim prognosis, submitted by Twitter friend @Scanman (Vijay Sadasivam), from the Tamil region of India: How Long Have I Got Left?, by Stanford neurosurgeon Paul Kalanithi. Seven years ago that was my...
by Ileana Balcu | Jan 14, 2014
In this guest blog post, member Carly Medosch describes Lisa Adams whom she knows from social media. Lisa Adams was diagnosed with stage 4 breast cancer and documented her journey in social media. In another post below we describe the media firestorm that was caused...
by e-Patient Dave | Jan 13, 2014
Update 9:20 pm ET: see important additions at the subhead below. When I wrote this today I didn’t have time to dig for excellent links like those. Thanks to Susannah Fox’s Twitter feed. One of the best social media patient figures I met, long ago, was...
by Danny van Leeuwen | Oct 12, 2013
The relationship between health team members, especially people and their clinicians and caregivers, frequently arises as a topic of this blog. Let me share with you one of the values of Advocates. I work for Advocates as VP of Quality. We express our values...
by e-Patient Dave | Feb 24, 2013
This is a long post, but it strikes deep to the core of the transformation underway in medicine, even in the science that drives medicine. It appears the world is starting to change, in a very good way. We’ve often written about the changing culture of medicine,...
by Susannah Fox | Oct 5, 2012
(A cross-post from susannahfox.com) I had the great honor of being part of the first Medicine X conference at Stanford University last weekend. I presented a sneak preview of new survey results collected by the Pew Internet Project and the California HealthCare...
by Kathleen O'Malley | Feb 1, 2012
A new Journal of Participatory Medicine tradition has just launched. Our monthly editorial series will tackle the toughest questions of participatory medicine, from both the patient and the provider side. The first installment, by Joe and Terry Graedon, is titled...
by Kathleen O'Malley | Jan 11, 2012
A new article in the Journal of Participatory Medicine tackles the problem of long wait times at doctors’ offices, a leading cause of patient dissatisfaction. “Waiting Room Remedy: Doctor Pays for Delays (The Doctor’s Perspective)” by Pamela...
by e-Patient Dave | Dec 22, 2011
One of the highlights of 2011 for me was the introduction in May (see our post) of the Engagement Behavior Framework by SPM member (and JoPM founding co-editor) Jesse Gruman. She and her team methodically identified 43 behaviors to be done by an engaged patient or...
In Memory of Nancy Finn: e-Patient, Advocate, Author, SPM SupporterJuly 16, 2025
A cure for what killed Doc Tom! Can people afford it?June 27, 2025
Learning Health Systems Empower Every American to Actually Make America Healthy Again Together, Part 2May 29, 2025
More important than Time and MoneyFebruary 5, 2025
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