by e-Patient Dave | Dec 14, 2011
I’m no expert on the FDA but my science antennas are twitching nervously about this, so I’ll post and invite discussion. In a surprising move last week, President Obama and HHS Secretary Sebelius overrules (basically, vetoed) the FDA’s recommendation...
by e-Patient Dave | Dec 12, 2011
Katie Matlack at SoftwareAdvice.com has posted an interactive timeline of EHR history. Interesting to see how things unfolded long ago. Note, too, two long-ago pivotal moments: The late 1960s introduction of Larry Weed, MD’s Problem-Oriented Medical Record,...
by e-Patient Dave | Dec 3, 2011
If you’re interested in a responsible approach to one’s own death, you’ll want to read How Doctors Die, on the Zocalo Public Square blog. It’s not a frequent topic of discussion, but doctors die, too. And they don’t die like the rest of us. What’s...
by e-Patient Dave | Dec 2, 2011
New SPM member @AfternoonNapper Sarah Kucharski was just featured on the Stanford School of Medicine blog, for a conversation she had on their Medicine X blog (emerging technologies) about how web-savvy patients are changing what’s acceptable in medicine. Well...
by Kathleen O'Malley | Nov 9, 2011
Guest blogger Nancy Finn reports on the popularity of health apps. She is the author of e-Patients Live Longer. The Pew Internet & American Life Project conducted a national telephone survey of 2,277 adults in May 2011 and found that 83% own some kind of cell...
by Dan Hoch | Nov 1, 2011
The short answer is “plenty” but the longer one will have to wait. This is a work in progress, but in the meantime, I’m surfing the net and finding great stuff to share. In particular, see this video or read the transcript of ethicist Harriet...
by Kathleen O'Malley | Nov 1, 2011
The Journal of Participatory Medicine has published a research paper entitled “Promoting Participatory Medicine with Social Media: New Media Applications on Hospital Websites that Enhance Health Education and e-Patients’ Voices.” The study analyzed the...
by Susannah Fox | Oct 18, 2011
I just published a quick take on who doesn’t gather health information online, including the stark finding that three-quarters of U.S. adults who have less than a high school education say they do not get health information online. One survey question I cited...
by Jon Lebkowsky | Oct 4, 2011
e-Patient Dave deBronkart is profiled in Technology Review, and at his own site responds to a “troll” whose comment on the Technology Review piece is dismissive of his e-patient experience.
by e-Patient Dave | Oct 2, 2011
Emmi Solutions, a provider of great interactive patient education tools, is running its second health literacy series on their blog “Engaging the Patient.”
by Kathleen O'Malley | Sep 27, 2011
Guest blogger and SPM member Nancy Finn looks at ways to improve patient-physician communication. There has been a lot of discussion about patient/provider communication, partly driven by the move to electronic health records and the question of who has access to the...
by Kathleen O'Malley | Sep 21, 2011
The Journal of Participatory Medicine recently published a new commentary, “A Skydiver Jumps, and an Online Community Exults,” about the unexpected power of storytelling in a lung cancer support group. After sharing an uplifting story with her online...
by Kathleen O'Malley | Sep 15, 2011
E-Patient Dave’s post about the Green Button idea generated a lively and substantive discussion in the Comments section. The idea of making it easy for patients to anonymously share their data online for the benefit of research is apparently one whose time has...
by Jessie Gruman | Sep 14, 2011
Continuing the thread of the difficulty of making good decisions about prescription drugs: It appears that many of us think that FDA approval of a drug means safer and better…Not so fast:...
by Kathleen O'Malley | Sep 13, 2011
The Journal of Participatory Medicine has published a new case study entitled “Autonomy in Jeopardy: Contrasting Participatory Health Models with Patient Decision Making Under Mental Health Law.” The authors examine the problem of how to achieve patient...
by Dan Hoch | Sep 12, 2011
I just received this press release and suspect the original study will get a fair amount of attention. While the original research article in Health Affairs requires a subscription, the press release tells most of the story. I encourage our readers to have a look at...
by e-Patient Dave | Sep 10, 2011
I’ve long been surprised that Planetree.org is not better known by everyone who talks about patient-centered care, patient engagement, etc. I attended one of their webcasts in April and wrote about a great booklet they discussed. I’m taking the liberty of...
by Kathleen O'Malley | Sep 7, 2011
The Journal has just published a commentary by SPM member Kathy Kastner, “My 8-Point Participatory Philosophy: What Makes Me a Participatory Patient.” The author describes the “aha moment” when she decided to become a participatory patient and...
by Jessie Gruman | Sep 6, 2011
Have you followed the long and painful efforts to improve the information prescription drug manufacturers are required to provide us? Really, given that almost half of us in the US take at least one prescription medication daily, you’d think this would be a high...
by Susannah Fox | Aug 31, 2011
In 2008, I asked for this community’s help in choosing which sessions to attend at the Chronic Disease Care conference sponsored by the California HealthCare Foundation. I loved the input I got and wrote 3 posts on what I learned about spreading improvement in...
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