by e-Patient Dave | Mar 9, 2020
The long-awaited rules on data access have been published this morning from two key parts of the US Department of Health & Human Services. I’ll expand this post with more links as we digest what’s been offered and will unfold in the coming week. The...
by e-Patient Dave | Feb 28, 2020
Now this is patient-centered care. This may be the most wonderful participatory innovation I’ve seen since OpenNotes in 2012. This one’s completely different: OpenNotes is about patient access to the medical record, but this one invites patients to see...
by e-Patient Dave | Nov 24, 2019
SPM member Brenda Denzler had Inflammatory Breast Cancer (IBC), which was followed by years of intractable symptoms that her doctors couldn’t diagnose – all their tests kept saying she was “fine.” “But I live with this body,” she...
by Ileana Balcu | Nov 20, 2019
Jane Sarasohn-Kahn makes a compelling argument at how important it is to think about all aspects of health, not just the healthcare system in her most recent blog post: Social Determinants of Health – My Early Childhood Education and Recent Learnings, Shared at the...
by e-Patient Dave | Nov 19, 2019
I’ve just discovered something I’ve long hoped to see: a training module to teach medical students about e-patients and how to interact with them! It’s a paper in the journal Medical Teacher: “But Dr Google said…” – Training medical students how to...
by e-Patient Dave | Nov 1, 2019
This is a cross-post from my personal blog. The organizers of the FHIR #DevDays conference next month have announced the four finalists who will come to Amsterdam to present their ideas to a panel of judges. I’ll copy/paste here from the conference’s...
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