by e-Patient Dave | Jun 14, 2016
A large part of our work here at the Society for Participatory Medicine is about changing culture of healthcare. In such times, I’d useful to look at our roots. Here’s an attitude tidbit from 1871 that our friends at the BMJ published sixteen years ago....
by e-Patient Dave | Jun 7, 2016
https://vimeo.com/169280480 I’ve known Eric Dishman for about five years, because we’re both kidney cancer patients. I’ve known that he’s a really sharp thinker, and a high-ranking executive at Intel, deeply interested in and involved in their...
by Michael Millenson | Jun 3, 2016
On social media and at meetings like Health Datapalooza, our favorite federal bureaucrats assure us of their commitment to open data and patient empowerment. But those are just soothing words; federal regulations are law. On April 30, I posted on e-patients.net an...
by e-Patient Dave | May 23, 2016
A truly significant moment in the history of medicine happened last Wednesday. I say that after attending almost 500 conferences and policy meetings in the past seven years, and I don’t say it lightly. Something many people think is impossible was presented live...
by e-Patient Dave | Apr 13, 2016
Third in our #DocTom10 series, which started here. Yesterday I asked that you download Ferguson’s white paper, the manifesto he was working on when he died unexpectedly, ten years ago tomorrow. Today we’ll look at the preface. The lost section:...
by Casey Quinlan | Mar 23, 2016
Our friends over at GetMyHealthData have put up a terrific post breaking down exactly how/why all people can access their health data. Get YOUR data – it’s yours! Here’s the whole GIF-rich party. Cats have nine lives to figure out how to get their...
by e-Patient Dave | Mar 22, 2016
We’ve often written here about open access medical literature (freely available) vs “paywalled” journals. It’s a controversial subject, and this guest post is about an idea I’ve never heard of: a hackathon to explore the subject. (In the...
by Casey Quinlan | Mar 8, 2016
SPM members Randi Oster of Help Me Health and Casey Quinlan of Mighty Casey Media made up two thirds of a three woman panel, “Patient Leaders Want To Kill Pharma TV Ads, Right Now,” at the 2016 ePharma Summit in New York last week (February 29 through...
by David Harlow | Feb 27, 2016
The recent Precision Medicine Initiative Summit at the White House saw dozens of private entities committing to join with the administration in supercharging the effort to enroll one million patients into precision medicine research programs, collecting and securely...
by Alicia Staley | Feb 8, 2016
SPM members Janice McCallum and Pat Rioux are also members of the New England chapter of HIMSS, the gigantic Health Information Management Systems Society. They have arranged a special deal for SPM members: free admission to their March 29 meeting (if you register by...
by e-Patient Dave | Jan 1, 2016
One sign of a movement’s progress is when the establishment takes notice. This one’s a biggie: Regina Holliday’s Walking Gallery of Healthcare (Facebook) is in the January 16 edition of the AMA Journal of Ethics. A five page article! Click the image...
by e-Patient Dave | Dec 18, 2015
This blog welcomes guest posts from SPM members on relevant topics. One of our Society’s newest members, Susan Cournoyer, is a tech industry analyst, and is familiar with the concept of systems that are well designed or weakly designed, e.g. with a “single...
by e-Patient Dave | Nov 27, 2015
This is a call for patient participation. We’re especially inviting members of our Society, but it’s open to anyone; feel free to circulate widely, especially to people with the conditions listed below! First, a bit of background, then the request. Regular...
by e-Patient Dave | Oct 28, 2015
For whose benefit does the healthcare industry exist? For the investors, or the people whose needs are the reason for the industry? Facebook last night was celebrating a small but significant legal victory this week for the “gimme my DaM data” movement (“Data about...
by Peter Elias | Oct 26, 2015
Peter Elias MD is a member at large on SPM’s board of directors. He’s a primary care physician in Maine who, when I first met him at a speaking event, said he’s always practiced this way but didn’t know it had a name – participatory...
by e-Patient Dave | Oct 25, 2015
Ah, the world of social media. This morning’s Boston Globe “Spotlight” investigative team (which won a Pulitzer in 2003) has this, citing local superstar hospitals Massachusetts General and its sister hospital, Brigham & Women’s. Within an...
by e-Patient Dave | Oct 22, 2015
Here’s something I’ve never done: I’m capturing a comment from this blog five years ago and making it a post of its own, so it’s easier to find, because I think this is going to be more and more of an issue. It’s clearer and clearer that,...
by e-Patient Dave | Oct 20, 2015
There can be no question that Stanford Medicine X is, head and shoulders, the most patient-oriented medical conference in the world. Susannah Fox first wrote about it here in 2012 after the first annual event, and it’s gotten better every year. I agree with what...
by e-Patient Dave | Oct 2, 2015
Yesterday super-e-patients Regina Holliday, Michael Seres and I spoke on a webcast titled “End-to-End Patient Engagement that Drives Loyalty and Outcomes,” hosted by Liz Boehm of Vocera.com’s @EINHealth Experience Innovation Network. Frankly, we...
by Casey Quinlan | Sep 9, 2015
A guest post from member Jeffrey Halbstein-Harris – this is a small slice of a longer piece he used as the basis for a speaking engagement. This is a call to consumers: my brothers and sisters who rely on healthcare and its infrastructure’s support throughout...
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