by e-Patient Dave | Oct 23, 2012
Quick, quick, do this now! Go add your signature to the hundreds who have already signed – this is about getting us access to our lab results, the same as any other health data! How important is this? Here’s a video of SPM member Ann Waldo discussing it...
by e-Patient Dave | Oct 1, 2012
Regular readers know that we’ve long anticipated the result of the OpenNotes project. Our first post about it was in June 2010: “OpenNotes” project begins: what happens when patients can see the physician’s visit notes? It tied the issue all the way back to...
by Kathleen O'Malley | Sep 27, 2012
This blogpost by Chuck Alston and Patrick McCabe originally appeared on the Health Affairs blog. Many thanks to SPM member Michael Millenson for alerting e-Patients.net to this piece. It has been 22 years since David M. Eddy — the heart surgeon turned...
by Kathleen O'Malley | Sep 26, 2012
Guest blogger Marya Zilberberg is the author of Between the Lines: Finding the Truth in Medical Literature. She originally posted this piece on her blog Healthcare, etc. I have been looking up information on endometriosis for a friend of mine, and came upon this from...
by Susannah Fox | Sep 16, 2012
My schedule only allowed me to attend Day One of the fantastically rich Medicine 2.0 Congress being held this weekend in Boston. I thought I’d share my impressions and notes in case they spark inspiration for other people, as each presenter and hallway...
by Kathleen O'Malley | Sep 14, 2012
Guest blogger Susan R. Mende, BSN, is a senior program officer at the Robert Wood Johnson Foundation, the nation’s largest philanthropy devoted exclusively to health and health care. She is engaged in the Foundation’s efforts to help consumers take an active role in...
by e-Patient Dave | Sep 10, 2012
In yet another terrific discussion on our members’ listserv, Casey Quinlan of Mighty Casey Media (Twitter @MightyCasey, @CancerForXmas) gave powerful voice to a patient’s perspective on controlling medical costs. I asked her to write it up. Go, Casey!...
by e-Patient Dave | Aug 30, 2012
SPM member Brian Ahier @Ahier is one of the best known and most respected voices for patient engagement in the “health IT geek” world. He’s Health IT Evangelist for Information Systems at Mid-Columbia Medical Center in The Dalles, Oregon, which is a...
by Susan Woods | Aug 8, 2012
I’ve been in healthcare for awhile, yet must admit that a lot of information packaged for patients/consumers is pretty dry and not too creative. Content, often developed by health professionals or educators, can be medical-heavy and design-light. My litmus test when...
by Kathleen O'Malley | Aug 1, 2012
Guest blogger Benoit Bisson, a kidney cancer patient, journalist and SPM member in Montréal, offers an international perspective on the participatory medicine movement. He’s @Benoit_Bisson on Twitter; his blog is BenoitBisson.com. Guest post submissions are...
by e-Patient Dave | Jul 28, 2012
What is the role of the patient? As we noted in April, TEDMED and the Robert Wood Johnson Foundation have designated “The Role of the Patient” as one of the twenty TEDMED Great Challenges for 2013, and the TEDMED site will host a big conversation about it...
by e-Patient Dave | Jun 23, 2012
In our Society for Participatory Medicine we define this new approach to medicine as …a movement in which networked patients shift from being mere passengers to active drivers of their care, and providers encourage and value them as full partners. An article in...
by e-Patient Dave | Jun 19, 2012
Shortcut: to respond to this Federal request, go to this post on the government’s blog. Update 9 a.m. 6/19: Josh Seidman, author of this post, says there’s no specific deadline; these comments will feed into HITPC )the Health IT Policy Committee), which...
by e-Patient Dave | Jun 12, 2012
I’ve received an interesting request: Women Executives in Healthcare, a Hartford professional organization, will hold a meeting this fall themed around “Who owns your data?” And they asked, what are patients’ top five issues? Of course I have...
by Alan Greene | Jun 5, 2012
At Health Datapalooza today in Washington, DC, the Society for Participatory Medicine announced the live beta launch of our Seal Program. The SPM Seal will be awarded to clinicians and to patients who make four simple, achievable, but powerful participatory...
by e-Patient Dave | May 5, 2012
Afternoon additions: You too can submit your opinion on the official public comment site. They even allow uploading attachments. As I just told a friend on Facebook: “How often, before this administration, did Washington make it truly easy for anyone to tell...
by e-Patient Dave | Apr 17, 2012
Updates: The text below the video was added later on 4/17, and the graphic was added 4/18. For me the evidence highlight of TEDMED last week was a talk by Ben Goldacre MD (@BenGoldacre), a charming and articulate doctor who’s dug deeply into what seems to be...
by e-Patient Dave | Apr 11, 2012
Correction 4/12: I’m glad to say that there are in fact several patient speakers at TEDMED. There was a massive communication disconnect in the months leading up to this TEDMED, leading to my impression that there were no patient speakers; I hope to find out how...
by Dan Hoch | Apr 5, 2012
In a recent commentary on the American Public Media program Marketplace Money, Francis Frei discussed the failure of self check-out at supermarkets. Her insightful commentary is clearly based on both personal experience as well as her professional knowledge of...
by e-Patient Dave | Mar 26, 2012
Since November I’ve been blogging on my personal site about what happens when a patient tries to help control costs, in my cost cutting edition posts. Most recently I noted that this stuff takes time, especially since our glorious American healthcare system...
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