by Sarah Krüg | Oct 11, 2016
The Society of Participatory Medicine (SPM) is excited to announce that we’re partnering with The Big Heist to accelerate building a Health 3.0 world, where patients actively participate and are empowered to control and improve their care. The Big Heist will be...
by Susan Woods | Aug 23, 2016
As the sweet days of summer 2016 start to wane, it’s time to make plans to attend key fall conferences. This year, the Society for Participatory Medicine is hosting Sips With The Society – meet and great receptions at Health 2.0 in Santa Clara and the...
by e-Patient Dave | Aug 9, 2016
We’ve written often about uncertainty, which is a recurring challenge in medicine and especially in participatory medicine, where issues of relationship and decisions are core. Some doctors have told me they were trained to display certainty even when things...
by e-Patient Dave | Jul 31, 2016
A large part of the Society for Participatory Medicine’s work is culture change, and that requires pointing to the cultural roots of today’s situation, so that well-meaning people today can understand how we got here, and how absurd today will look in the...
by Peter Elias | Jul 7, 2016
Peter Elias MD (in photo at left) is a member-at-large on the board of our Society for Participatory Medicine. See his earlier posts here. Particularly relevant is his Proposal for a TRULY patient-centered medical record, The experience he recounts here, as a...
by Danny van Leeuwen | Jun 24, 2016
SPM member Danny van Leeuwen is @HealthHats on Twitter. Last week I attended the American Academy of Communication in Healthcare (AACH) Conference in New Haven – 2016 ENRICH Healthcare Communication Course and Research Forum at Yale, entitled, Diverse Voices, Common...
by e-Patient Dave | Jun 23, 2016
A new article in our Journal of Participatory Medicine explores an area that apparently has had no prior literature: the effect of gardening on how well stroke patients engage in their care. From the abstract: Five main themes were identified from interviews and...
by e-Patient Dave | Jun 22, 2016
Regular followers of this blog know for years we’ve been hot on the trail of the never-ending search for truth, justice, and please some reliable advice on medical matters. Tonight a google alert alerted us to the next round, the next attempt: a column by the...
by e-Patient Dave | Jun 17, 2016
This may be THE most important, articulate speech I’ve seen about profound progress in patient power – and why it matters. This talk by Mark Wilson about OpenAPS, at last Friday’s DiabetesMine D-Data ExChange 2016, contains a metaphor that’s...
by e-Patient Dave | Jun 15, 2016
Tuesday morning in Washington, the Post hosted a 2-1/2 hour event on improving healthcare, with numerous speakers on several topics. Of special interest to SPM is this 26 minute segment that includes OpenNotes, which we’ve often written about. OpenNotes director...
by e-Patient Dave | Jun 14, 2016
A large part of our work here at the Society for Participatory Medicine is about changing culture of healthcare. In such times, I’d useful to look at our roots. Here’s an attitude tidbit from 1871 that our friends at the BMJ published sixteen years ago....
by Michael Millenson | Jun 3, 2016
On social media and at meetings like Health Datapalooza, our favorite federal bureaucrats assure us of their commitment to open data and patient empowerment. But those are just soothing words; federal regulations are law. On April 30, I posted on e-patients.net an...
by e-Patient Dave | May 23, 2016
A truly significant moment in the history of medicine happened last Wednesday. I say that after attending almost 500 conferences and policy meetings in the past seven years, and I don’t say it lightly. Something many people think is impossible was presented live...
by e-Patient Dave | May 20, 2016
For some reason we haven’t written much about this here – our only post is from SPM Past President Nick Dawson 15 months ago – but this is such a big deal. Here’s an 11 minute introductory video on this – I won’t say more,...
by e-Patient Dave | May 16, 2016
The times, they are a-changin’: medicine is realizing there can be gold found on the internet, amid all the garbage that’s also there. Items: In 2014 a European government started buying Google Ads telling patients “Don’t Google it, check a...
by e-Patient Dave | May 4, 2016
Guest post by SPM member Liz Salmi of CCCC, an organizational member and supporter of our Society for Participatory Medicine. Note also (at bottom) that this event provides a model for other organizations to follow: patient participation is enabled by a foundation...
by John M. Grohol, Psy.D. | Apr 15, 2016
Next in our #DocTom10 series, which started here. I first met Tom Ferguson in 1994 online (where else?) when he reached out via email to chat about online support groups. I was still in graduate school at the time, and he had come across my indexes of Internet...
by e-Patient Dave | Apr 14, 2016
Next in our #DocTom10 series, which started here. Ten years ago today, Tom Ferguson died unexpectedly. He was in the hospital at the University of Arkansas for Medical Sciences (UAMS), being treated for multiple myeloma. Tom’s work back then was captured on his...
by e-Patient Dave | Apr 11, 2016
“Doc Tom” Ferguson, the source of our Society for Participatory Medicine, died unexpectedly ten years ago this week, April 14, 2006. In the coming days we’ll run a series of posts remembering his work and vision. Especially, we’re going to walk...
by e-Patient Dave | Mar 30, 2016
Somehow I’d never heard of National Doctors’ Day, but apparently it started 25 years ago, in 1991. As one of many SPM members whose life was saved (or is being helped) by excellent physicians, I’m in! And I want to shine a broader spotlight on the...
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