by e-Patient Dave | Feb 17, 2013
Cross-posted from Regina’s own blog. Please vote for her Shorty Award nomination by posting a Tweet here through Monday, Feb 18. She only needs about 80 votes to get into the top six finalists in #activism. I’m cross-posting this for two reasons. First, in...
by e-Patient Dave | Dec 24, 2012
In the Society for Participatory Medicine we talk about professionals and patients being full partners in care. And sometimes, as in any partnership, the two part. Have you ever “fired” anyone? Before it got to that point, did you express your concern...
by e-Patient Dave | Dec 4, 2012
A guest post by SPM member Marge Benham-Hutchins, PhD, RN, an assistant professor of nursing informatics at Texas Woman’s University. This is an email she sent me today, citing an online discussion of the appalling death in the Health Affairs column...
by Kathleen O'Malley | Sep 27, 2012
This blogpost by Chuck Alston and Patrick McCabe originally appeared on the Health Affairs blog. Many thanks to SPM member Michael Millenson for alerting e-Patients.net to this piece. It has been 22 years since David M. Eddy — the heart surgeon turned...
by Kathleen O'Malley | Aug 1, 2012
Guest blogger Benoit Bisson, a kidney cancer patient, journalist and SPM member in Montréal, offers an international perspective on the participatory medicine movement. He’s @Benoit_Bisson on Twitter; his blog is BenoitBisson.com. Guest post submissions are...
by e-Patient Dave | Jul 23, 2012
Last summer I visited Health Literacy Missouri, and summed up the great work I saw there in Clarity is Power. Today’s Boston Globe has another example – the illustration at right, what’s known as a decision aid, to help patients engage in making...
by Susannah Fox | Jul 19, 2012
A few weeks ago, with a combination of alarm and excitement, I realized that I would be presenting my research about rare-disease communities to a roomful, not just a row full, of actual rare-disease patients and caregivers. This was no academic exercise. It was as if...
by e-Patient Dave | Apr 19, 2012
What news to wake up to – SPM’s “resident artist” Regina Holliday is in Newsweek. It’s not a happy story – nothing about her story is – but it’s good to see such things getting the visibility they deserve. The article,...
by Kathleen O'Malley | Apr 9, 2012
This guest post by SPM member Scott Strange originally appeared on his blog, Strangely Diabetic. Scott will host this week’s #s4pm Tweetchat on Wednesday, April 11 at 8pm Eastern/5pm Pacific (username @Strangely_t1) on #diabetes. It seems that every day we read...
by Susannah Fox | Mar 16, 2012
On February 29, 2012, Rare Disease Day, I hosted a conversation with Catherine Fairchild Calhoun and Laurie Strongin, two people who have inspired me in my research about the social impact of the internet on health. They have also inspired me personally, finding joy...
by e-Patient Dave | Mar 1, 2012
This was originally posted on my own site. Social media response has said the examples of dialog help people envision how they can express things with their providers. There’s a new ending, at bottom. There’s nothing here that will be a surprise to any...
by Sarah Greene | Jan 31, 2012
NOTE: We’re happy to welcome back Sarah Greene, one of the founding members in 2009 of SPM and its journal. She left a while ago for London, where she’s continued her work at the leading edge of thought about medical knowledge. Sarah is ahead of most of...
by e-Patient Dave | Dec 22, 2011
To understand a headline – especially a year-end “Top N” list – you need to look under the hood and find their criteria. Yesterday the New York Times Well blog posted The Most Popular Health Topics of 2011. I looked, eagerly, to find the rise...
by e-Patient Dave | Dec 12, 2011
We’re thrilled to welcome well-known quality and safety authority Michael Millenson as the newest member of the Society for Participatory Medicine. Here is his first guest post, referring back to his popular article in our Journal. He illustrates how recently...
by John M. Grohol, Psy.D. | Oct 23, 2011
The 60 minutes interview with Steve Jobs’ biographer is an intriguing piece that gives us a few insights into Steve Jobs and his battle with pancreatic cancer. But the most disturbing part of the interview for me was watching Walter Isaacson, a former editor of...
by e-Patient Dave | Jul 22, 2011
This has nothing to do with healthcare, but it’s the most priceless example I’ve seen in a long time of Not Customer-Oriented Thinking, and perhaps Scary Workflow, both of which do apply to healthcare sometimes. As a Boston-based traveler, I have United...
by Kathleen O'Malley | Jul 19, 2011
SPM member John Novack, of the Inspire.com patient communities, submitted this guest post by Wendy Station about another online community — another great example of patients engaging in their care, supplementing the value they get from their medical...
by Susannah Fox | Jul 19, 2011
Just in case anyone is curious: my notes from Health Foo, a meeting held last weekend in Cambridge, MA. It’s long, so skim for the 9 lessons if you want a shortcut. What: Foo Camp is an unconference, constructed on the spot by the people who show up, with just a...
by John M. Grohol, Psy.D. | Jun 25, 2011
Like so many attempts before it — drkoop.com and RevolutionHealth.com to name just two — Google has found that implementing personal health records in a meaningful way is really, really hard. So hard, in fact, that it has given up and is shuttering its...
by e-Patient Dave | May 13, 2011
The comments below add significant thoughts to what I said – be sure to read them. A lot of people are intrigued with using “cloud” applications and storage for personal health data. This week we’re seeing what I think is the final nail in the...
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