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From the UK: “Habits of an Improver”

From the UK: “Habits of an Improver”

by | Jun 7, 2017

We in the Society for Participatory Medicine are in many stages of awakening to our potential as active participants in the health system. Some have a particular focus on a disease or a technology; many of us come to it through our own experience (good or bad) as a...

Closing the Gaps in South African Health

by | Jun 2, 2017

Guest post by SPM member Vanessa Carter. See bio at end. In many countries globally, the e-Patient revolution has raised many significant questions about the role of empowered patients in an integrated health system, particularly with expanding access to Information...

Service Agreements Among Friends and Colleagues

by | Mar 23, 2017

I’m an old hippie [left]. I’ve lived in many houses and on a farm (commune?) with other people. Regularly we heard, “I agreed to what? No I didn’t.” “Since when is that a rule?” I, and then my wife and I, developed skill in...

Dell Medical School and the Future of Care

by | Feb 20, 2017

In 2009, along with several physicians, patients and health activists, I helped form the Society for Participatory Medicine, a nonprofit promoting “a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in...

Person-Centered #CarePlanning – What data?

by | Jan 4, 2017

Last month, in Communicate What? #CarePlanning, I declared the #CarePlanning hashtag, and told from personal experience the importance of communication in enabling participatory care. I ended with this – my perspective as the person who has the problem and the...

We’re partnering to support The Big Heist!

by | Oct 11, 2016

The Society of Participatory Medicine (SPM) is excited to announce that we’re partnering with The Big Heist to accelerate building a Health 3.0 world, where patients actively participate and are empowered to control and improve their care. The Big Heist will be...

How can we cope with uncertainty?

by | Aug 9, 2016

We’ve written often about uncertainty, which is a recurring challenge in medicine and especially in participatory medicine, where issues of relationship and decisions are core. Some doctors have told me they were trained to display certainty even when things...

OpenNotes on stage at live Washington Post event

by | Jun 15, 2016

Tuesday morning in Washington, the Post hosted a 2-1/2 hour event on improving healthcare, with numerous speakers on several topics. Of special interest to SPM is this 26 minute segment that includes OpenNotes, which we’ve often written about. OpenNotes director...

Just Say “No” to Medicare’s MACRA Tokenism

by | Jun 3, 2016

On social media and at meetings like Health Datapalooza, our favorite federal bureaucrats assure us of their commitment to open data and patient empowerment. But those are just soothing words; federal regulations are law. On April 30, I posted on e-patients.net an...

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