by e-Patient Dave | May 14, 2018
Posted today on our SPM Connect member forum by SPM vice-chair Joe Ternullo Join me in cheering on SPM members Lorraine and Gene Sacco, founders of the Reid R. Sacco Adolescent & Young Adult Cancer Alliance. (@AYACancerAllian) The Chronicle Episode “Beyond...
by Danny van Leeuwen | May 6, 2018
As you may know from previous posts, I sit as a patient/caregiver stakeholder on a Center for Medicare and Medicaid Services (CMS) technical expert panel (TEP) about Quality Measurement Development: Supporting Efficiency and Innovation in the Process of Developing CMS...
by e-Patient Dave | Apr 27, 2018
In the interest of speed, this is a quick note for interested parties – apologies for minimal explanation. 90 minutes from now, 2:30 pm ET on Friday 4/27, at the Health Datapalooza conference in DC, people will gather in an “unconference” session to...
by e-Patient Dave | Apr 18, 2018
Our Society for Participatory Medicine’s presence and impact in the world is escalating this year, thanks to many factors. A big one is the addition of activist board members like Burt Rosen of member company HealthSparq, and another is that our time has come. A...
by e-Patient Dave | Apr 12, 2018
As a social movement works its way through a culture, sometimes we discover surprising disconnects or parallels. Dr. Danny Sands and I were recently interviewed for the Psych Central podcast, and in the process, host Gabe Howard said something exactly like that....
by Carla Berg | Feb 14, 2018
Editor’s Note: This is a first installment (we hope) in a series about an all-too-real-life medical drama experienced by a former SPM board member and longtime sci-tech journalist Carla Berg-Nelson (aka “Carla B.”). There is much to learn here about being an...
by e-Patient Dave | Jan 25, 2018
The health IT sphere is abuzz with Apple’s groundbreaking announcement yesterday of the new ability, in the beta version of iOS 11.3, to download lab results, allergies, “problem lists,” etc. from multiple hospitals. So far twelve hospitals have...
by e-Patient Dave | Jan 17, 2018
This is a long overdue post of the next session from our Society’s first conference on October 25. The first keynote, about OpenNotes, was posted here, including this note: WOW was our Society’s first conference on October 25 a breakthrough event! Titled...
by e-Patient Dave | Jan 16, 2018
Guest post by SPM member Mark Sullivan, MD, PhD, who is Co-Director of Behavioral Health Services at the University of WashingtonCenter for Pain Relief. We welcome guest posts from SPM members – see guidelines here. I joined the Society for Participatory...
by e-Patient Dave | Nov 29, 2017
I’m way late in blogging this – too much travel and jet lag – but WOW was our Society’s first conference on October 25 a breakthrough event! Titled ““Participatory Medicine: Transforming the Culture of Care” (web page), it produced...
by e-Patient Dave | Nov 27, 2017
Why the Movement Needs a Breakthrough, and How You Can Help Guest post by SPM member Tyson Ortiz (right), a highly committed member of SPM who works in organizational culture change. His previous post, How I became an e-patient: through practice, with coaching (using...
by e-Patient Dave | Nov 16, 2017
The image above is from the blog post described below. SPM board member-at-large Peter Elias MD is a recently retired family physician who says he’s always practiced participatory medicine, long before he knew it had a name. He’s contributing a terrific...
by Linda Stotsky | Sep 27, 2017
I’m known in social media for my role as @EMRAnswers. Most people don’t know the personal and family pain that makes me know how important this is. Here it is. (That’s me above, sharing my story at the Walking Gallery meetup at HIMSS in 2015 –...
by e-Patient Dave | Sep 22, 2017
This may be the best short talk ever about the importance of participatory medicine. SPM’s past president Sarah Krüg (@SaraKrug1) recently did a 10 minute TEDx Talk in Brussels. It’s one of those rare ones that’s pretty riveting. Watch it. Join us. Our Society for...
by e-Patient Dave | Jul 7, 2017
SPM past board member Michael Millenson has an important new commissioned essay in the BMJ spelling out some parameters of collaborative health, which might as well have been written as participatory medicine. Happily, they made it open access so patients can read it...
by John M. Grohol, Psy.D. | Jun 24, 2017
e-Patients Blog The blog of the Society for Participatory Medicine. Want to be a contributor? SPM Response to ONC RFI on Advancing Interoperability of EHRs and HIE Apr 24, 2013With the tireless help of Adrian Gropper, and the counsel of executive committee members...
by e-Patient Dave | Jun 21, 2017
As his TEDMED profile says, Dr. Isaac (Zak) Kohane, MD, PhD, co-directs the Center for Biomedical Informatics at Harvard Medical School. He’s a long-time believer in the power of well managed information to help create well managed care. Many members of SPM got...
by e-Patient Dave | Jun 9, 2017
Sunnie Southern is an avid activist for better care, a proactive patient (very responsible), a long-time member of our Society for Participatory Medicine, and a good friend with an irrepressibly bright disposition. As I often say, “I’ve never seen anyone...
by e-Patient Dave | Jun 7, 2017
We in the Society for Participatory Medicine are in many stages of awakening to our potential as active participants in the health system. Some have a particular focus on a disease or a technology; many of us come to it through our own experience (good or bad) as a...
by Nancy Finn | Jun 2, 2017
Guest post by SPM member Vanessa Carter. See bio at end. In many countries globally, the e-Patient revolution has raised many significant questions about the role of empowered patients in an integrated health system, particularly with expanding access to Information...
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