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Getting Your Doctor to Really See You

by Michael Millenson | Nov 9, 2018

Doctors are regularly deluged with advice on how to engage patients. But how can you, as a patient, get your doctor to truly engage with you as a person? Your health and even your life could depend upon it. By “engage,” I don’t mean just the doctor not interrupting...

For Diabetes Month, be conscious that language matters.

by e-Patient Dave | Nov 2, 2018

Lifetime SPM member Deborah Greenwood is a diabetes educator who has long believed in patient empowerment and participatory medicine. SPM welcomes posts authored by our members – see the guidelines. November is Diabetes Awareness Month. And November 14, 2018 is...

Doc Tom Awardees Announced at SPM2018 Conference

by Sue Woods | Oct 29, 2018

On October 17th, the Society enjoyed their 2nd conference in Boston. Filling a larger room than last year, attendees – in person and virtual – enjoyed an impressive lineup of speakers. The passion in the room was palpable. Much more to come on that. A...

At #SPM2018, Ivan Handler (with @MightyCasey) Wants to Put the Care Back in Healthcare

by e-Patient Dave | Oct 15, 2018

Here’s the last in our series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston, attached to the prestigious Connected Health conference. Last chance: register here....

#SPM2018 speaker preview – Brennen Hodge: “Health is the New Wealth”

by e-Patient Dave | Oct 12, 2018

Here’s the latest in our series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston, attached to the prestigious Connected Health conference. Register here....

#CochraneForAll + #BeyondTheRoom = #PatientsIncluded on blast

by Casey Quinlan | Oct 6, 2018

Red Hot Chili Pipers at the Colloquium | image credit: Simon Williams Photography I won the big platinum #PatientsIncluded ring (much better than brass) this year with an opportunity to attend the Cochrane Colloquium, the global health science and health services...

#SPM2018 speakers @_AngelaKennedy and daughter Grace: “Personal Health Information is Saving Grace”

by e-Patient Dave | Oct 5, 2018

Here’s the latest in our series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston, attached to the prestigious Connected Health conference. Register here....

#PatientsIncluded statement for SPM’s Second Annual Conference: #SPM2018

by e-Patient Dave | Oct 3, 2018

Here’s the latest in a series of posts about the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston, attached to the prestigious Connected Health conference. Register here. (Our #SPM2018 series has more about the speakers and...

#SPM2018 Hot Topic: Can a Market for Health Data also Protect Patients’ Rights to Their Data?

by e-Patient Dave | Sep 28, 2018

Here’s the latest in a series of posts by and about the outstanding topics we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston, attached to the prestigious Connected Health conference. Register here. (Our #SPM2018...

#SPM2018 speaker Kristina Sheridan: Leveraging the data of patients’ stories

by John Novack | Sep 26, 2018

Here’s the latest in a series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston, attached to the prestigious Connected Health conference. Register here....

#SPM2018 speaker @RasuShrestha: “Let’s move from paternalism to where the patient is a true participant”

by e-Patient Dave | Sep 25, 2018

Here’s the latest in a series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston, attached to the prestigious Connected Health conference. Register here. Healthcare...

The next evolutionary step for SPM: a manifesto

by John Novack | Sep 24, 2018

Here’s the latest in a series of interviews with outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston. Register here. And see this blog’s #SPM2018 series for more about, or by, the speakers and...

@PsychCentral Show’s Gabe Howard to co-host live podcast episode at #SPM2018

by John Novack | Sep 17, 2018

Here’s the latest in a series of interviews with outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston. Register here. Embracing participatory medicine has helped Gabe Howard @GabeHoward29 manage...

Burt Rosen on the #SPM2018 conference: “Fix this f$%(*$&’ing mess we call health care!”

by e-Patient Dave | Sep 14, 2018

I joined the board of the Society for Participatory Medicine (sorry, I have to shorten it to SPM) about one year ago. I joined because I honestly think health care is f$#%#’ed up and I want to make a difference. We all agree about the problems, but my views on...

THCB picks up post by Josh Rubin – “We The Patients” is a winner!

by Casey Quinlan | Aug 27, 2018

From SPM Lifetime Member Josh Rubin: Fellow S4PMers, I am elated to report that on Monday, August 20, 2018, The Health Care Blog (THCB) re-posted my S4PM guest blog post titled, “Biomedical Knowledge Must Be Mobilized to Save Lives, Not Privatized in the...

What Healthcare Can Learn from Mr. Rogers

by e-Patient Dave | Aug 7, 2018

Editor’s note: This is a guest post by SPM member Nancy Michaels. Members of our society are welcome to submit guest posts – see the guidelines. I remember when Mr. Rogers’ Neighborhood first aired on the Public Broadcasting System. In my mind, he...

Biomedical Knowledge Must Be Mobilized to Save Lives, Not Privatized in the “Last Mile”

by Casey Quinlan | Aug 5, 2018

Guest post by SPM Lifetime Member Joshua C. Rubin, JD, MBA, MPH, MPP Last week, Facebook’s unprecedented stock price collapse triggered by concerns over personal data privacy, as well as same-day commentary regarding GlaxoSmithKline’s investment in 23andMe to gain...

Announcing SPM’s new Doc Tom Awards. Nominations are open!

by e-Patient Dave | Aug 3, 2018

It’s here: our Society’s new Doc Tom Awards are open for nominations! Spread the word, and join us at our second annual conference on October 17 for the award! If you don’t yet know about Doc Tom Ferguson, founder of the e-patient movement, read our...

Study: Engaging patients in co-design works. Join us at our #SPM2018 conference Oct 17!

by e-Patient Dave | Jul 26, 2018

A new article in the open access BMC journal Implementation Science reviewed 48 articles about involving patients in projects that redesigned small and large parts of healthcare delivery. Conclusion: higher levels of engaging patients in the work led to higher level...

by Michael Millenson | Jul 4, 2018

Originally published six years ago – as good as new today! The empowered patient, skeptical of professional authority, is not a new phenomenon: s/he was actually created by the American Revolution. Reading through historian Gordon Wood’s Pulitzer Prize-winning...

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