by Danny van Leeuwen | Jun 10, 2018
SPM advocates vociferously for patient ownership of their own data. Success would be revolutionary. But revolutions do not suddenly appear. They result from persistent long-term effort, strategy, and tactics. Key milestones often only appear in hindsight. The...
by e-Patient Dave | Apr 13, 2018
Longtime SPM member Danny van Leeuwen (@HealthHats) is seeking nomination and support as a “patient/caregiver stakeholder” seat on the Board of Governors of PCORI, the Patient-Centered Outcomes Research Institute, about which we’ve blogged often...
by Danny van Leeuwen | Mar 28, 2018
Introduction SPM member, Danny van Leeuwen, Health Hats, introduces a new blog sponsored by the Patient-Centered Clinical Decision Support-Learning Network: Patient Expertise: Sharing and informing choices to connect research and clinical experience. Patient expertise...
by Sarah Krüg | Jan 4, 2018
Language has a magical influence on the lives we lead, with an impact on our thoughts, emotions, and/or actions. The words we use are one of the most potent ingredients in the science of language. Words have the power to heal, guide and motivate. They can confuse,...
by e-Patient Dave | Oct 24, 2017
It’s that time again! Our friends at the Patients View Institute GoPVI.org are again running their “impact awards.” I got to be present during the award’s sessions in DC last year, and it’s just terrific what they’re doing –...
by Carla Berg | Sep 1, 2017
(chapter two of three) Watching physicians pivot from ‘More is Better’ to ‘Less is More’ For British cardiologist David Warriner it all began when he was a trainee MD and it was his job to organize the daily tests ordered on the ward. Time and...
by Carla Berg | Aug 18, 2017
(Part one of three) You Are (Almost) There Have you ever been to a big trade event in a hot sector like healthcare or tech? If you are a member of S4PM, perhaps it was at CES or HIMSS or Health 2.0 or a MedX or a TedMed event. If such a scene is familiar, then...
by e-Patient Dave | Jul 5, 2017
Short notice, but if you can join, please do – if you can’t make it, the archive will be published. EUPATI (European Patients’ Academy) has a 90 minute webinar today, July 5, at 11 am ET, 8 am PT, 5 pm Central Europe. To register click the graphic or...
by Ileana Balcu | Jun 19, 2017
Lawrence “Larry” Weed (born December 1923, died June 3, 2017) was an American physician, researcher, educator, entrepreneur, and author, who is best known for creating the problem-oriented medical record as well as one of the first electronic health records....
by e-Patient Dave | Jun 13, 2017
What would you think if your fire department had expensive, snazzy fire trucks that failed to show up when needed? What would you think if a neighboring town had less fancy equipment but was incredibly dependable about using what it had? That’s pretty much the...
by Nancy Finn | May 10, 2017
The practice of medicine is shifting from episodic patient care to care focused on addressing many broad-based, unique, sometimes esoteric health conditions. Fueling this transition is a new focus on patient reported outcomes and health data registries that aggregate...
by e-Patient Dave | May 2, 2017
This post by SPM member MaryAnne Sterling is a thrilling sequel to our ongoing posts about CCCC (an organizational member of our Society) and its support for e-patients at their annual summit. MaryAnne is CEO of Sterling Health IT Consulting. She’s a healthcare...
by e-Patient Dave | Apr 7, 2017
We’ve written often here about the BMJ’s leadership on not just listening to patients but looking at healthcare from the patient’s perspective. Their patient partnership campaign, launched in 2014, includes a patient advisory panel that works...
by e-Patient Dave | Mar 29, 2017
In November we posted about an extraordinary development: NEJM Data Analysis Challenge: can others create value by seeing researchers’ data? The project has come to fruition, and the big event (free) is next Monday-Tuesday. The question for us: What’s the impact...
by e-Patient Dave | Mar 27, 2017
An announcement today in Europe (press release below) brings a new angle to the copious US coverage of drug pricing, such as predatory pricing of the EpiPen and the smirking, seemingly sociopathic Martin Shkreli. For the drug described below, the Médecins du Monde...
by e-Patient Dave | Mar 20, 2017
Please cite this post as “by Dave deBronkart, Marilyn Mann and Peter Elias MD” or, on Twitter, “@ePatientDave, @MarilynMann & @PHEski.” Our blog software only allows listing one author but they provided 2/3 of the content. The medical news...
by e-Patient Dave | Mar 2, 2017
Do not go look this up. I’ll post the answer tomorrow. We on this blog know Dr. Tom Delbanco as, among other things, the “father” of OpenNotes, along with “co-parent” Jan Walker, RN MBA. (For a history lesson, Tom’s also the lead...
by e-Patient Dave | Feb 9, 2017
Now THIS is what we call #PatientsIncluded. Twenty patient leaders will be fully funded to attend a new “MasterLab Leadership Institute” in the San Francisco bay area March 31-April 2. Click here (or the graphic above) to learn more and apply by next...
by Liz Salmi | Jan 11, 2017
Intro note by e-Patient Dave: What a great development! CCCC is an organizational member of our Society, and last year we blogged CCCC conference announces inaugural class of palliative care e-patients, and now, even better news: e-patient participation is getting...
by e-Patient Dave | Jan 9, 2017
The much-quoted line “Patients are the most under-used resource in healthcare” was first uttered in the 1970s by Warner Slack, MD, when he was a young doctor in Madison, Wisconsin. It’s seen many versions and incarnations since then, but it all...
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