by Danny van Leeuwen | Dec 9, 2016
I want to share a family story and show how it connects to something we’ll all face, where real participatory thinking – and communication – make all the difference. My wife and I built a house together – the whole house, everything except...
by Danny van Leeuwen | Nov 11, 2016
On September 26, 2016, President Obama recognized Health IT Week by saying: We have worked to clarify an individual’s legal right to access their health information and transmit it where they choose—whether it’s to a family member or to their smartphone. These efforts...
by e-Patient Dave | Nov 11, 2016
This is big. Please share it with anyone you know who’s a believer in open data. You may have heard that back in January the New England Journal of Medicine created a firestorm by saying “parasites” about people who want to see a researcher’s...
by Nancy Finn | Nov 2, 2016
Antibiotics and similar drugs, called antimicrobial agents, have been used successfully for the last 70 years to treat patients who have infectious diseases. However, these drugs have been used so widely and for so long, that the infectious organisms the antibiotics...
by Sarah Krüg | Oct 21, 2016
Spearheaded by Vice President Joseph Biden, the White House Cancer Moonshot Task Force was created to double the rate of progress in cancer research and treatment, striving to accelerate what could be achieved in ten years in just five. Earlier this week, Vice...
by e-Patient Dave | Sep 22, 2016
In July we invited you to vote on a large group of patient activists, to select finalists in Health 2.0 conference’s tenth annual conference: Health 2.0: first conference to offer Patient Activist awards. Vote! What a gathering this will be: travel expenses for...
by e-Patient Dave | Aug 29, 2016
Thanks to @SusanCarr, the highly patient-centered editor of Patient Safety & Quality Healthcare, for this tipoff this morning. I only have time right now to post this & run out the door. Click the image to visit the piece on the Times site, but first,...
by e-Patient Dave | Aug 9, 2016
As regular readers know, for years we’ve been blogging here about OpenNotes, in which patients and their designated caregivers can read every word their clinicians write, so they can be more informed. The OpenNotes tagline, “Doctors and patients on the...
by e-Patient Dave | Aug 8, 2016
We’d love to start a list of other patient-authored papers and posters – let us know in the comments! We know of Dana M. Lewis & Scott Leibrand’s poster about #OpenAPS in June – who else?? We’ve written before about e-patient Sean...
by Ileana Balcu | Aug 1, 2016
This is a guest blog post by Cleo Kordomenos. Cleo was my student in the New Media and Health Communication class I taught at TCNJ. More about the class is shared in this post. Cleo Kordomenos is a Senior Communication Studies student at The College of New Jersey...
by e-Patient Dave | Jul 29, 2016
A patient’s ability to choose the provider they want depends largely on information – same as any other choice, right? So this blog has long praised The Leapfrog Group for its deep analysis and publication of hospital quality and safety data, through its...
by e-Patient Dave | Jul 21, 2016
Voting ends Sunday July 31 Patient activists who attend conferences know that it’s been a long climb to get patient voices welcomed. The #PatientsIncluded movement has been around for years, making small dents, but Health 2.0 is one of the best:Â while they...
by e-Patient Dave | May 24, 2016
As regular readers know, we’ve written many times about OpenNotes, the project funded by Robert Wood Johnson that blew the doors off of beliefs that bad things happen when patients see their charts. (We blogged about the original results in 2012.) Now a new...
by e-Patient Dave | May 18, 2016
We lost a great one today. Jody Schoger @JodyMS was one of the founders of #BCSM (breast cancer social media), the first patient community that started on Twitter and grew into a 501(c)(3) organization, bcsm.org. She passed on this morning, and Twitter is in tears....
by Michael Millenson | Apr 30, 2016
Quick summary for the impatient: Michael’s post urges public comment in the upcoming comment period, and ends with this: “If we in the patient community do not raise questions and objections to this critically important MACRA rule, you will definitely not...
by e-Patient Dave | Apr 21, 2016
Next in our #DocTom10 series, which started here. If you haven’t read about Tom’s preface, and the Foreword by Pew Research, we urge you to. Remember, this was all written a decade ago. Today, Tom’s introduction. Please discuss! The key...
by e-Patient Dave | Apr 21, 2016
We’ve often written here about palliative care and end of life. (The two are not the same: you can have palliative care without having decided the end is near.) They’re, in a sense, the ultimate expression of patient-centered care, forcing the...
by e-Patient Dave | Apr 20, 2016
Next in our #DocTom10 series, which started here. Today we resume our review of the chapters of Tom’s White Paper. This Foreword stands on its own, with no comment needed, so we’ll just paste it in verbatim. Note: these numbers are from 2000, when the Web...
by e-Patient Dave | Apr 17, 2016
Next in our #DocTom10 series, which started here. This is a blessing – the first post here in two years by Susannah Fox. More about this at the end of the post – for now, let’s get to the good stuff. She originally posted this as a comment on...
by e-Patient Dave | Apr 13, 2016
Third in our #DocTom10 series, which started here. Yesterday I asked that you download Ferguson’s white paper, the manifesto he was working on when he died unexpectedly, ten years ago tomorrow. Today we’ll look at the preface. The lost section:...
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