Articles on policy issues

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Pay people for their data – yes, or no?

by Casey Quinlan | Nov 16, 2018 | 8 comments

SPM members Casey Quinlan (yes, yours truly) and Jan Oldenburg were part of a trinity of folks debating the idea of paying people for the data they contribute to the digital economy, in healthcare and in all other sectors. Here’s the full version of the...

CMS: Use Patient Experts in Measure Development, but Don’t Pay Them?

by Danny van Leeuwen | Nov 11, 2018 | 0 comments

CMS (Center for Medicare and Medicaid)’s work on Value-Based Measures matters for patients and caregivers because we seek affordable, accessible, equitable, and effective medical care. Or in English: Transparent cost within my means, in a location I can reach,...

Whither Cochrane, for e-patients and everyone else?

by Casey Quinlan | Oct 20, 2018 | 3 comments

This will be the third, and last, in my short series on attending the Cochrane Colloquium in Edinburgh in September of this year. In the first post, I talked about what that conference was like; in the second, I shared an overview of Cochrane as a global movement to...

The who, what, when, where, and why of Cochrane

by Casey Quinlan | Oct 13, 2018 | 9 comments

If you’ve been paying attention, you know that yours truly got the chance to attend the annual Cochrane Colloquium in Edinburgh in September this year, thanks to a travel stipend from SPM, a #PatientsIncluded bursary from Cochrane UK, the hosts of the 2018...

Dr. Patti Brennan – #SPM2018 speaker preview “Supporting the Care Between the Care: The Role of the National Library of Medicine”

by e-Patient Dave | Oct 9, 2018 | 1 comment

[Update: this post has been picked up and cross-posted on the widely read The Health Care Blog] Here’s the latest in our series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct....

#CochraneForAll + #BeyondTheRoom = #PatientsIncluded on blast

by Casey Quinlan | Oct 6, 2018 | 0 comments

Red Hot Chilli Pipers at the Colloquium | image credit: Simon Williams Photography I won the big platinum #PatientsIncluded ring (much better than brass) this year with an opportunity to attend the Cochrane Colloquium, the global health science and health services...

#SPM2018 speaker @RasuShrestha: “Let’s move from paternalism to where the patient is a true participant”

by e-Patient Dave | Sep 25, 2018 | 3 comments

Here’s the latest in a series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston, attached to the prestigious Connected Health conference. Register here. Healthcare...

THCB picks up post by Josh Rubin – “We The Patients” is a winner!

by Casey Quinlan | Aug 27, 2018 | 0 comments

From SPM Lifetime Member Josh Rubin: Fellow S4PMers, I am elated to report that on Monday, August 20, 2018, The Health Care Blog (THCB) re-posted my S4PM guest blog post titled, “Biomedical Knowledge Must Be Mobilized to Save Lives, Not Privatized in the...

Biomedical Knowledge Must Be Mobilized to Save Lives, Not Privatized in the “Last Mile”

by Casey Quinlan | Aug 5, 2018 | 1 comment

Guest post by SPM Lifetime Member Joshua C. Rubin, JD, MBA, MPH, MPP Last week, Facebook’s unprecedented stock price collapse triggered by concerns over personal data privacy, as well as same-day commentary regarding GlaxoSmithKline’s investment in 23andMe to gain...

Facebook patient privacy issue – important #BCSM Twitter chat TONIGHT, July 16 9pm ET

by e-Patient Dave | Jul 15, 2018 | 0 comments

TONIGHT: 9 pm Eastern time. #BCSM Twitter chat on the latest Facebook privacy issue. This time the data leaked is from a patient group. FB says it’s a nothingburger. What do you think? Facebook has a record of privacy leaks. The poster shown here (click to...