by e-Patient Dave | Apr 13, 2018 |
Longtime SPM member Danny van Leeuwen (@HealthHats) is seeking nomination and support as a “patient/caregiver stakeholder” seat on the Board of Governors of PCORI, the Patient-Centered Outcomes Research Institute, about which we’ve blogged often... 
by e-Patient Dave | Apr 2, 2018 |
Guest post by SPM member Francie Grace. Here’s a last minute Important item for your Monday To Do list. Spotted in a reminder tweet Friday from former U.S. Chief Data Scientist D.J. Patil (@dpatil): Hey data scientists, just a few days to give the @NIH... by e-Patient Dave | Apr 1, 2018 |
For years many have argued that it’s wrong for research that’s funded by the government (i.e. taxpayers) to be hidden from the people who paid for it (taxpayers) by hiding the results behind paywalls. This tradition not only makes it harder for... 
by e-Patient Dave | Mar 6, 2018 |
UPDATE FOR ATTENDEES: Try to arrive 10 minutes early — 10:50 am — to get oriented. On arrival a host will scan your badge and point you to the big round “Discovery desk” where we’ll gather. We’ll talk a bit for 10 minutes, then... by e-Patient Dave | Jan 17, 2018 |
This is a long overdue post of the next session from our Society’s first conference on October 25. The first keynote, about OpenNotes, was posted here, including this note: WOW was our Society’s first conference on October 25 a breakthrough event! Titled... 
by e-Patient Dave | Nov 29, 2017 |
I’m way late in blogging this – too much travel and jet lag – but WOW was our Society’s first conference on October 25 a breakthrough event! Titled ““Participatory Medicine: Transforming the Culture of Care” (web page), it produced... 
by e-Patient Dave | Jun 13, 2017 |
What would you think if your fire department had expensive, snazzy fire trucks that failed to show up when needed? What would you think if a neighboring town had less fancy equipment but was incredibly dependable about using what it had? That’s pretty much the... by e-Patient Dave | Mar 29, 2017 |
In November we posted about an extraordinary development: NEJM Data Analysis Challenge: can others create value by seeing researchers’ data? The project has come to fruition, and the big event (free) is next Monday-Tuesday. The question for us: What’s the impact... by e-Patient Dave | Mar 27, 2017 |
An announcement today in Europe (press release below) brings a new angle to the copious US coverage of drug pricing, such as predatory pricing of the EpiPen and the smirking, seemingly sociopathic Martin Shkreli. For the drug described below, the Médecins du Monde... by Ileana Balcu | Jan 10, 2017 |
Member Angela Lundberg’s blog article was just published for RheumatoidArthritis.net. It discusses the high out-of-pocket costs of health insurance for people who already have insurance. Health Insurance & RA: Dangerously Uncovered Besides the benefits she...
Join SPM’s workshop May 16 at “What’s The Fix?” at Dell Medical School. Free registration!April 18, 2018
Support @HealthHats Danny van Leeuwen’s nomination for PCORI Board of GovernorsApril 13, 2018
Psych Central podcast: “We often feel very isolated, but we have a lot more in common than we realize.”April 12, 2018
Must Do By Midnight: Comment On NIH Plan For Handling ALL Health Data!April 2, 2018
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