by e-Patient Dave | Oct 6, 2014
Yesterday at the New York Academy of Medicine was the first of Jessie Gruman’s two remembrance events, which we blogged about. Here’s a view of the gathering, which was followed by a reception. It was a fitting, moving, great tour through her life, with...
by Susannah Fox | Sep 11, 2014
This essay was written by Sarah Greene, co-founder of the Journal of Participatory Medicine and currently Founder/CEO of RapidScience.org. “That the powerful play goes on, and you may contribute a verse.” – Walt Whitman, ‘O Me, O Life’ We New Yorkers have been...
by e-Patient Dave | Aug 18, 2014
We reported five weeks ago about the passing of Jessie Gruman, one of the greatest figures in our movement, founder of the Center for Advancing Health (CFAH), founding co-editor-in-chief of our Journal of Participatory Medicine, and much more. CFAH has since expanded...
by e-Patient Dave | Jul 26, 2014
We don’t tell you often enough here of new pieces in JoPM, our Journal of Participatory Medicine. Of course you can subscribe to the journal on their site, but I hope to specifically point things out here. (See also our past posts in the JoPM category.) Here are...
by e-Patient Dave | Jul 15, 2014
I’m saddened (really saddened, as I write this) to report that one of the titans of our movement, Jessie Gruman, died unexpectedly yesterday at home in New York. She had long been sick, but the demise was sudden. In addition to the mountain of work she produced...
by e-Patient Dave | Jan 11, 2012
Regular readers know that last year Jessie Gruman of the Center for Advancing Health was treated for her fourth cancer. (Knock it off, willya??) (Diagnosis post here...
by e-Patient Dave | Jun 1, 2011
Ten days ago a post here mentioned the 14th ICSI / IHI Colloquium. I said the Society for Participatory Medicine was well represented, including: Jessie Gruman, four time cancer patient and founding co-editor of our journal, gave an important breakout session, about...
by e-Patient Dave | Sep 27, 2010
Jessie Gruman, PhD, Co-Editor-in-Chief of our Journal of Participatory Medicine, underwent surgery today in New York to address the fourth cancer-related diagnosis of her life. Today she released a blog post about it. Jessie has been a natural choice to co-lead our...
by Sue Woods | Dec 6, 2017
The following is a shared Press Release from the Society of Participatory Medicine and the Journal of Medical Internet Research: JMIR Publications is the new publisher of the Journal of Participatory Medicine (JoPM) (Toronto/Boston, Dec 6th, 2017) The Society for...
by e-Patient Dave | Apr 24, 2017
SPM president Joe Ternullo, formerly of Partners Healthcare, sent this letter to our members this week. It will also be posted as an editorial on the Journal’s site. Our Journal, begun as a grass roots initiative at the Society’s formation, is a crown...
by Jessie Gruman | Aug 1, 2013
This summer, I am reflecting and writing about what I wish that I had known earlier about getting good care following active cancer treatment, based on my experience with five different cancer diagnoses and what I have learned from others. If you have been diagnosed...
by Ileana Balcu | Feb 15, 2013
The Health Affairs February 2013 issue is titled “New Era of Patient Engagement” and the content matches the title. Nick Dawson describes the day in his blog post Health Affairs is the new shirtless dancing guy Here’s a short extract from the blog...
by e-Patient Dave | Jan 27, 2013
Guest post by Elaine Waples, one of our new (today) members of SPM (with her husband Brian Klepper). This story illustrates one of the core dysfunctions in American medicine today – lack of coordination – and makes a compelling case for patients and...
by e-Patient Dave | Oct 23, 2012
USA Today has a piece today on HealthGrades, one of the sites that provide information on medical outcomes and safety. The data show that quality varies widely. Experienced e-patients know this, and will learn what they can about their local treatment options....
by e-Patient Dave | Jun 23, 2012
In our Society for Participatory Medicine we define this new approach to medicine as …a movement in which networked patients shift from being mere passengers to active drivers of their care, and providers encourage and value them as full partners. An article in...
by Kathleen O'Malley | Mar 13, 2012
Guest blogger Susan Woods, a physician and SPM board member, urges patients to help shape PCORI’s draft National Priorities for Research and initial Research Agenda, and offers her own comments here. The public comment period ends at 11:59 pm EST on March 15....
by e-Patient Dave | Dec 22, 2011
One of the highlights of 2011 for me was the introduction in May (see our post) of the Engagement Behavior Framework by SPM member (and JoPM founding co-editor) Jesse Gruman. She and her team methodically identified 43 behaviors to be done by an engaged patient or...
by e-Patient Dave | Oct 14, 2011
In any movement there’s a stage of maturation, where aspirations get fleshed out with specifics. That time is arriving for participatory medicine. As patient engagement (aka consumer engagement) earns attention, the question increasingly arises: “Where do...
by e-Patient Dave | Sep 29, 2011
Yesterday the New York Times reported that some health insurers have applied to regulatory agencies to push premiums sharply higher – usually double-digit increases, while citizens are suffering. This falls on top of the 11 year history reported last year by...
by Kathleen O'Malley | Sep 25, 2011
Guest blogger Beth Austin shares her professional and personal advice on choosing the right doctor. She is the principal of Crescendo Consulting Group. I’ve spent a lot of time in my professional life knee-deep in articles on healthcare quality and medical...
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